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- - Cymbalta (https://www.neurotalk.org/peripheral-neuropathy/22798-cymbalta.html)

Quote:

Originally Posted by Hurty (Post 129109)

cyclelops -- I'm the same way with benadryl, nyquil, tylenol PM, etc. I get wired immediately! My hubby, OTOH, nyquil knocks him right out. It's not fair! I also didn't tolerate any SSRI's--and they didn't do anything for the pain either so it wasn't a hard choice when it was time to stop..and I've tried a few. As I've said before, I'd like to find one person who isn't depressed and is using cymbalta successfully just for nerve pain. I haven't really been able to find any. They must be so successful in their treatment that they aren't actively posting on PN boards!

daniella, you didn't offend at all, no worries. I think maybe I just don't know enough about pain clinics and their approach to treating folks with pain who aren't a) addicted b) drug seeking c) recovering from surgery or accident...

If that sounds confusing, I guess I mean I understand rehabbing from stroke, broken leg, etc. And I also understand that people sometimes have adverse recovery from these things where the pain level doesn't die down (is that the RSD? not sure). I completely understand the aspect of getting someone with an intolerable pain level to find and learn alternate ways to cope so that they may ultimately be able to live with less hard core pain meds and still have a life. I'll just go kicking and screaming down that path if and when I end up on it.

You might try the Cymbalta group at Yahoo. I believe there are a few people there taking it strictly for PN, etc.

I'm glad I didn't offend you. Like I said I have mixed feelings about the pain clinic and really feel that it needs to be a combo of meds and therapy. Like at the clinic I was at some were court ordered there for the drug issue whcih made no sense to me cause I just wanted help with my leg and have no issues at all with drugs. As for cymbalta which I'm on I do have depression. I will say I have tried so many anti depressent and sleep meds. Before this I was in treatment for depression/ed in an inpatient place and they put everyone on them I saw no relief from the depression/sleep so for me working on self coping made me recovery. Fighting through. I do wonder though for you Hurty about the long term issues with things like vicadin? I know when I was vicadin and my new neuro wanted me off we did it gradual. For me though I found little relief with it even so it was a easier. Lastly I have wondered about cymbalta and I'm on it but on the commercial it says the pain from depression. I know when I was super depressed you often feel ache and dragged down. This pain though is hugely different then the pain I suffer from now which like being shot. If that makes sense?

In my opinion, the powers that be are not differentiating between drug related dependency and people with chronic pain issues.

When they finally realize that people with PN have a legitimate reason to go to the pain clinic, that they are not going there just to get high, well, THEN, they will take YOUR kind of pain seriously.

I keep hearing doctors say "go and see a psychiatrist", (they actually told Alan that once". Can you imagine? a person has such pain from PN and they tell him to see a psychiatrist. Thank god there was a pain management program at Coney Island 5 years ago, and they put him on the fentanyl patch. He had to sign a contract and everything. The doctor explained "Alan, I know this does not apply to you, but we have people who come in and they are drug addicts, so we have to have everybody sign this contract".

Maybe in a few years or so when these doctors themselves, or one of their family members, comes down with any form of PN, then MAYBE THEN, they will understand what you guys go through.

One can only hope.

Melody

I can so realte to this Melody. When I was at the clinic on my fourth day of non stop physical therapy after months of doing nothing I was in crying pain. When I kept telling the docs and needed relief and I felt they were not keeping me comfortable I had to write how I felt about the pain on paper. My nurse said it was cause we know when we think about pain it makes it worse. Ok to a point yes I agree but when you feel like you have been shot writing your feelings like I said doesn't cut it. There was man with a cane there and I was complaining to him and he related and I wanted to use his cane to hit the nurse and then tell him to write about his pain. Thats not me and I would never. I think I have yelled once in my life so there I went back to my chair to write my feelings. I really think there needs to be grey areas. I hate when docs generalise. It was the same with my eating disorder recovery.