After having an armful of blood taken at my last appt. I have had a scan of my brain and complete spine. I got a call from consultant saying they were keen to get me in for more tests. I also got a call from GP saying I needed to contact them urgently.
Call 1. gP. The doctor wants to see you immediately, ok when will I come?
I have an appt in 3 weeks. Hmmmm that's not very immediate!
I have a cancellation for next Monday? Well I'd better take that then!

Call 2 hospital. Just returning call from consultant, asked me to call the medical secretary to sort something out. Ok, name dob etc. yes you need to speak to doctor, I'll take your number and get them to call. They have my number! They called me and told me to ask you to sort something out for further tests? Yes that's right, but you need to speak to the doctor.

Call3. Doctor. As a result of your blood tests and further to your scans and your assessment on your appointment I'd like to get you in for some more tests, we'll start with lumbar puncture, emg, ncs, and take it from there.
Get in touch with the med secretary and they sort out a date, sometime in next 2-3 weeks. Oh and have you seen the GP yet?
No, on Monday. First avail appt.
oh well you should have been seen this week, you are very anaemic again, looks like past 7 years you have gone from iron tablets to anaemia and back again, we'd need to know why. You will be getting gastroenterologist appt to check that out too. They probably find out why you lost so much weight, it's not good. We'll talk about rest of bloods at next appt.


And this is the start of my journey. It feels like a roller coaster with some stops along the way.

What do they need the lumbar puncture for? And what is an EMG? I know nerve conduction study.

This is why I don't like hospitals. I saw pain clinic who refered me to pelvic physio, who refered me to urology,who refered me to neurology thru GP. Who are referring me to gastroenterology.
All because I lost the feeling to my bladder!


It daunting and to be honest a bit worrying.