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Old 06-29-2007, 08:02 PM #1
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Roxie2007 Roxie2007 is offline
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
Roxie2007 Roxie2007 is offline
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Roxie2007's Avatar
 
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
Default Yikes! I start IVIG infusions next Thurs. what questions should I ask??

HI!!
I know some of you are receiveing the IVIG infusions for your neuropathy, and I'd love to pick your brains....so to speak
My insurance turned us down flat last week but today decided that I do need the infusion treatments. So I start them next Thurs. The insurance O.K.'d the infusions for once a week for 3 months and each infusion will be 4 hrs. long. Does this sound right? I thought some people were doing them once every 2 weeks for 2 hrs? Anyway.......please if you have info or things I should be asking Critical Care Infusions before they start....I'd love to hear.....also what side effects have you had or can I expect to have?? Thanks all! Roxie
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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