[MAT52]

I've been waiting for over nine weeks to hear from my new rheumatologist and am no longer under a neurologist. My neuro symptoms haven't worsened but nor have they improved. They are just there constantly now in the form of a wet cold feeling in legs and feet, shooting pains in hands and elbows, a bone ache pain in my calves, shins and ankles and the wretched nightly scorching pain in hands and feet.

Meanwhile my eGFR (renal function) was a bit low a month ago so has just been rechecked - results next week. And I was asked to bring a urine sample which the nurse told me has invisible blood in it. So she sent it to the lab for analysis and the results show no sign of infection. I'm increasingly sure I either have Lupus or Sjogrens or Vasculitis but not getting anywhere with this as autoantibodies have been inconclusive to date.

So while I wait for things to either improve miraculously or worsen significantly - I find myself wondering if the large irregular cyst on my left kidney might not be responsible for more than doctors have understood so far. I have made this connection because I have a friend who was diagnosed and treated for epilepsy - but it turned out that one of her kidneys had failed and once it was removed all her seizures went away and she has been fine ever since.

So I was wondering if there is a known connection between renal diseases and neuro symptoms such as mine?