Thanks for the reply, just out of interest are you still able to do any running. I have been trying to run for 30 mins three times a week. Yes, I will bring up the joint and running thing when I see the neurologist. The funny thing about it is I actually feel better when I exercise, go figure - I guess it is the adrenaline. :winky:

Yes, I've kept up my normal training for the last year. I trained and ran my first marathon after the SFN symptoms started. It does seem that i get more tingling type feelings after or the next day after a harder run but I have no way to know if that's positive, neutral or negatively affecting anything. I think it's just that they are being "used" same way we all feel our damaged nerves more anytime they are triggered (like when I get an adrenaline rush while driving, like if someone almost cuts me off, I notice I get a big spike of SFN symptoms.)

Inner ankle bone pain
 

Hi everyone. Just an update. My hands and wrists and elbows have improved significantly but my ankles are starting to frustrate me. I have ankle pain (an ache (ankle) particularly in the right ankle (inside) which then is associated often with pins and needles or tingling and sometimes burning pain in the first three toes and this seems to occur at times on the left. The pain can be worse as the day progresses yet I can run on it most times without pain. When I squat sometimes it is worse.

I have been discharged from the neurologist and said I do not need to see him again. The pain I think is lessening very slowly and he said it will take 1-2 years to resolve, he still thinks it is a post viral infection.

However this ankle pain is relatively new and I am down to see a musculoskeletal specialist in about 3 weeks time. Anyone had symptoms like that?:winky:

I have not tried grape seed extract but I hear that is really effective

A really positive update
 

Hi everyone

Just to let you know what has happened over the past couple of months:
* Have found two specialists, one a rheumatologist/musculoskeletal specialist, one a musculoskeletal/pain specialist in Auckland who have been brilliant.
* Treatment has involved manipulations to my neck and thoracic spine and I also got an injection into my right medial ankle bone and have been working on some 'mindfulness' stuff.
* The manipulations have significantly helped the burning and tingling in my hands and wrists and elbows.
* The injection has helped my ankle pain - the specialist believed there may have been a musculoskeletal reason for this.
* The 'mindfulness' has really helped the pain in general, I think that mine had turned into chronic pain and I am working on positive thinking and other methods.
* I am now off all medication and while I still have flare ups and numb feet when playing tennis or running I feel that it is getting better and certainly no worse.
* Conclusions: either I just had a sensory neuropathy from a virus that is now resolving itself through a natural course.
or the stuff I have had done or am doing is making a difference or a combination of the two.

I am now starting to think that I may still have a marathon left in me yet.

Note: I wonder if I did have a course of sensory neuropathy like the article in my thread above?

I am so happy, I wish everyone the best and will keep you updated.

Burning too
 

Did you ever find relief ? I had MRI of spine , nerves tested , blood tests - every test know to man - still sun burn head to toe and feels like I used sand paper for a wash cloth - on gabepentin 800mf 3 x a day and 50 mg of topomax still miserable with no answers - really depressed about what the future holds
I have a Corp job that is high stress but I always have - 3 yrs ago I had 2 discs replaced on my neck - the fusion is fine MRI of spine top to bottom is good - I'm scared

Hi there. Sorry to hear about your symptoms. Everything seems to have subsided significantly. Still get a bit of burning in my toes and in my hands odd random fingernail symptoms but did have an MRI of my problematic right ankle. Revealed that one of the bones in my talus was rubbing on one of my tendons and causing pain, which could account for the burning pain. Off to see an orthopaedic specialist in two weeks. May need to just be shaved in a simple operation.

I decided to take a musculoskeletal point of view, my neurologist discharged me and said that the symptoms should disappear slowly due to a virus. I don't know if it is good luck or just time or some of the treatment. Went and saw a rheumatologist with a special interest in musculoskeletal soft tissue injuries (I know interesting combination) and had some manipulations specifically on my neck and lumbar spine and had injections two in my neck and lumbar spine with diluted cortisone and called prolotherapy. I have used him before for my neck problems. Well would have to say things are 85% or so better.

I am very lucky working in the musculoskeletal field as a physio and have some inside knowledge of the best in the business. In a city the size of Auckland we have a few outstanding musculoskeletal specialists and I have been under the care of 2-3 of them over the last few months and I am so grateful. I still have the odd flareup and am off medication.

Have you tried to find a person that is not from one specialty but able to go across 2-3 a pain/musculoskeletal and rheumotologist/musculoskeletal specialist were the two I found most helpful. All through this I had no outward symptoms and thought I may have been going mad but I found two specialists that actually believed in me and my symptoms and were prepared to go the extra mile. I wish you luck and I will continue to keep you updated!