Hi all

Thanks for the opportunity to tell you a bit about what is currently happening. I have had a relatively quick onset of peripheral neuropathy affecting mainly my hands and feet for the first 4 weeks, burning, pins and needles and numbness being the main symptoms. These are sensory only.

Now over the last couple of weeks have had episodes where my right arm feels sort of numb and heavy but I still have full use of it. Also achiness around certain joints or parts started with elbows and AC joints (near shoulder) but now in back, knees, hips and occasionally across shoulders at back. These often feel like sunburn or like a bit of a strain/ache. Sometimes I feel it in my forearm and thighs and they are only for a minute or two at a time.

Had three lots of blood tests ruling out all inflammatory markers, diabetes, vitamin B12, connective tissue, vitamin levels fine and have just had a Lyme disease blood test. Awaiting a nerve conduction test but not for another 6 weeks. While the burning has sort of decreased since the onset. I'm worried about the numbness in my hand, arm. No musculoskeletal problems I know of, no swelling, redness or morning joint pain.

Neurologist said to push on with exercise as long as it doesn't ramp up the symptoms. He seems to think it will resolve with time but worried about these new symptoms. Any advice greatly appreciated.

It sounds like your Neuro is a common sense Dr. Even if Idiopathic, not much treatment options anyway. Sounds like your nitrition has been good. I used this lotion on burning and tender skin surface. It's not much help but every bit counts. Good Luck, Ken in Texas.

Has anyone experienced an ache in both hips or their ACJ joints by their shoulders at night particularly? I have also experienced some positional type pain. Is that normal?

So you can't come up with WHY this all came on. Were you by chance taking the class of abx like Cipro or Levaquin. This class of abx have caused so much joint damage. I've never taken them but have heard from many who have.

In the beginning my legs would sometimes feel like they were full of cement and I still had full use of them.

Your mentioning it feels like sunburn describes burning to me. How does it differ from your regular burning symptom? My burning sometimes feels like a sunburn.

Have you had any MRI's? I ask because of the achiness you describe. I know you said there was no muscular skeleton stuff you were aware of, but you can have issues without pain. I did.



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I had the burning skin, zapping, shocking in the legs and feet plus Lumbar pain and hips,buttocks.knees that was a deeper "bone" feeling type pain. My PN was kick started by car wreck plus being an out of control diabetic. The "bone" pain was eventually addressed with Hydrocodone. All else was assressed w/Gabapentin and cremes. Hope this helps, Ken in Texas.P.S. I write in the past tense because almost all symptoms have changed as I am two and a half years into this.

Thanks for that, no very lucky in terms of medication. I only take the occasional Ventolin for asthma and amitripyline for the nerve pain but nothing else. Try to avoid all drugs as much as I can. Appreciate the reply.

[QUOTE=pinkynose;1183823]In the beginning my legs would sometimes feel like they were full of cement and I still had full use of them.



Your mentioning it feels like sunburn describes burning to me. How does it differ from your regular burning symptom? My burning sometimes feels like a sunburn.

Have you had any MRI's? I ask because of the achiness you describe. I know you said there was no muscular skeleton stuff you were aware of, but you can have issues without pain. I did.


Hi there. Thanks for your reply, the sunburn sort of feeling I get is particularly across the back and it seems to be like a positional thing. It is sort of a stingy feeling when I first get to bed and then it sort of feels fuzzy and warm. Whereas the burning thing I get is sort of sharp and goes from one joint to another or down from my wrist into my hands.

I think an MRI is a good idea. I am going away for about 10 days so will see if a complete change of scenery changes the joint pain. I only get the aching pain at random times and it doesn't seem to be related to exercises. I have done a few marathons in the past so I guess hip pain could be related to that, it is just strange that it has come on after I have stopped running for 2-3 months at night.

Thanks for that, I have been on amitripyline and do find that cremes help especially natural ones with arnica etc. Did they find any bone or musculoskeletal problems? How are you now?

The "bone" pain was neuropathy also. All pain has changed and no longer on any pain meds. I am left with weak legs and pain that is tolerable. Thanks, Ken in Texas.