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-   -   Dr. Norman Latov; Gene Thearpy called VM202 (https://www.neurotalk.org/peripheral-neuropathy/229010-dr-norman-latov-gene-thearpy-called-vm202.html)

beatle 11-24-2015 10:49 AM

While I do not doubt the results, I am generally skeptical of any new treatment for NP and I have not been able to find a patient out there say anything about VM202 other than the man in this video, who they used for quite a bit of PR earlier in the year.

I look forward to additional results from the trials as well as from other PN victims. We need regenerative medicine, not just pain management.

jurgen975 11-26-2015 03:33 PM

Quote:

Originally Posted by beatle (Post 1185201)
While I do not doubt the results, I am generally skeptical of any new treatment for NP and I have not been able to find a patient out there say anything about VM202 other than the man in this video, who they used for quite a bit of PR earlier in the year.

I look forward to additional results from the trials as well as from other PN victims. We need regenerative medicine, not just pain management.


i have tried to find Keith winkowski on sicial media to ask him how he experinced this treatment but i have found him yet maybe one of you is succesful tracking him down

Only found this
http://www.spokeo.com/Keith-Winkowski

Maybe tomorrow i will give this some more time

beatle 11-26-2015 04:03 PM

Here he is:

https://www.lloyds.com/the-market/di...llinois?Name=W

jurgen975 11-26-2015 11:52 PM

Quote:

Originally Posted by beatle (Post 1185679)

Well done beatle

DavidHC 11-29-2015 06:05 PM

This may be a naive question, but is there anyway to get something akin to this in supplement form or similar gene therapy somehow somewhere else? I'm not even certain if this would work in my case where the SFN is all over the place from head to toe, though it did begin in my hands and feet and is worse there.

beatle 11-29-2015 06:47 PM

Quote:

Originally Posted by DavidHC (Post 1186100)
the SFN is all over the place from head to toe, though it did begin in my hands and feet and is worse there.

Same with me.

DavidHC 11-29-2015 07:56 PM

Really? Beatle, I'd love to talk more with you. Perhaps we can help (at least in form) one another. I spent yesterday trying to figure out whether mine is length dependent or not. I find the categories somewhat more porous, though clearly mine is not restricted to the legs and hands. There is no known cause in my case yet, and though it came on full force about 1/2 a year ago, in hindsight I realize that it has been developing for a few years now.

Quote:

Originally Posted by beatle (Post 1186107)
Same with me.


beatle 11-29-2015 09:18 PM

Quote:

Originally Posted by DavidHC (Post 1186112)
Really? Beatle, I'd love to talk more with you. Perhaps we can help (at least in form) one another. I spent yesterday trying to figure out whether mine is length dependent or not. I find the categories somewhat more porous, though clearly mine is not restricted to the legs and hands. There is no known cause in my case yet, and though it came on full force about 1/2 a year ago, in hindsight I realize that it has been developing for a few years now.

I am three years in and never thought it would last this long. Now I know I'm stuck with it as it continues to progress. My onset was sudden as well and each known cause ruled out, it's still idiopathic. I too see some signs in hindsight that I did not realize at the time but it would not have mattered anyway since there is no treatment for it.

I hope yours improves David. Some experience a reversal, even some type of remission is possible although not probable.

DavidHC 11-29-2015 09:54 PM

I'm sorry to hear that, Beatle. And thank you for your kind words. I hope so too. And I hope so for you too, despite being 3 years in. I like to think that I will improve given my relative younger age, though that does also make it more depressing, not that getting this at any age is fun and makes it easier to deal with.

I plan to post some tonight or tomorrow and would appreciate your input too. It will be about my situation and what I've done. I've significantly improved from the summertime, but that's still only in energy and every now and then some symptoms disappear and new ones appear, so I'm never sure. I can say that my energy has increased significantly, though I do have bad days. Now, I think it may be that I haven't stuck with my diet. I plan to write about that shortly.

Are you any special diet? What are you symptoms like and how did they progress, if I may ask? I do think mine is linked to my gut health, so if I hadn't drunk so much alcohol, especially beer with all that grain, and eaten so poorly, I think I could have avoided it. My GI health has been poor for many years and for many years prior. But, of course, there's no way to know for sure.

Thanks for writing. I'm glad I found this forum.




Quote:

Originally Posted by beatle (Post 1186119)
I am three years in and never thought it would last this long. Now I know I'm stuck with it as it continues to progress. My onset was sudden as well and each known cause ruled out, it's still idiopathic. I too see some signs in hindsight that I did not realize at the time but it would not have mattered anyway since there is no treatment for it.

I hope yours improves David. Some experience a reversal, even some type of remission is possible although not probable.


beatle 11-29-2015 11:46 PM

David,
I forgot to ask your age. I am 45.


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