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-   -   Article (https://www.neurotalk.org/peripheral-neuropathy/229534-article.html)

baba222 12-06-2015 11:40 PM

Quote:

Originally Posted by kiwi33 (Post 1187121)
Hi baba222

The information in this link lists many of the SNPs in SCN9A which have been associated with perception of pain; http://www.painresearchforum.org/res...rce/5937-scn9a .

Thank you for the article.
I have a list from the SCN9A but cant find the important SNPs. There are about 50 listed in my raw data. I joined 23 and me after the FDA debacle and was trying to figure out my situation before I had to fork out major cash for more lab work.

I hope someone is in the know.

I can also PM my raw data to anyone interested.

TIA

baba222 12-06-2015 11:45 PM

Quote:

Originally Posted by LouLou1978 (Post 1187081)
Hi Baba 222, the genetic test is SCN9A - I'm in the UK , they do it is as part of the blood testing for SFN here.

:)

Are you able to post or PM the information about this?

Thank you so much for responding and helping me.

kiwi33 12-07-2015 12:14 AM

Hi baba222

"I can also PM my raw data to anyone interested."

If you would like to I would be happy to have a look round and see what I can come up with (no promises).

boiler1993 12-07-2015 10:23 AM

Quote:

Originally Posted by baba222 (Post 1187102)
I had 23 and me.
What is the particular SNP?
There are many SCN9A to my raw data.
TIA

Hi Baba - I had the SCN9A test done in Ohio. The test was after a meeting with a genetic counselor in the neurology dept at OSU who I was referred to by my main neurologist. It was a blood draw here too - they took two vials I believe and then the results were given to me about 8 weeks later (I don't have the mutation so still idiopathic for me) - hope this helps!

baba222 12-07-2015 01:54 PM

Quote:

Originally Posted by boiler1993 (Post 1187166)
Hi Baba - I had the SCN9A test done in Ohio. The test was after a meeting with a genetic counselor in the neurology dept at OSU who I was referred to by my main neurologist. It was a blood draw here too - they took two vials I believe and then the results were given to me about 8 weeks later (I don't have the mutation so still idiopathic for me) - hope this helps!

Thanks so much. Sounds like I will have to go thru some hoops. Was trying to do it and maybe figure it out on the cheap.

Take care.
:hug:

baba222 12-07-2015 01:54 PM

Quote:

Originally Posted by kiwi33 (Post 1187134)
Hi baba222

"I can also PM my raw data to anyone interested."

If you would like to I would be happy to have a look round and see what I can come up with (no promises).

I sent you a PM.

Thank you so much!

kiwi33 12-12-2015 06:04 AM

Hi baba222

PM'd you - my impression is that you don't have anything to stress about :).

DavidHC 12-12-2015 11:43 AM

So what happens if one has this mutation? A little research showed up that it can cause 30% of SFN. So is the idea here (via the article linked to) that finding how to block this mutation will resolve the SFN?

I share the concern re blocking all pain. That could be immensely dangerous for a variety of reasons.


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