Interesting. I wonder if certain of my symptoms would disappear from reduced salt. What kind of salt were you consuming? I've so far seen no connection between my salt intake and symptoms, but plenty with glucose.

As far as I remember from your posts, my nutrition is very different then yours. I am vegan, I eat veggetables, fruits, unprocessed carbs, legumes, nuts and grains. Almost no processed, fried or smoked food, I hardly add salt to my food (I guess my daily sodium consumption is about 500mg), or eat spicy food. I get most of my fluids from the veggie and fruits so I don't drink much.
When I started this diet all the Sjogren's like symptoms improved/disappeared and I thought for a while that I was cured.
I stopped using eye drops (I had punctal plugs and used to put eye drops and gel many times each day), the dry skin, nose and skin greatly improved, the joint and muscle ache, and the low grade fever disappeared, the POTS improved and I had more energy.

But I still developed Lymphoma, SFN, and debilitating fatigue despite of many years with that nutrition...
Who knows whether the nutrition helped or not with these.... I don't have a control group...

Right, that's true. My diet is paleo ketogenic. I consume plenty of quality sea salt, almost entirely pink Himalayan salt. I wonder how you'd do on such a diet. I wonder how I'd do with less salt. My face symptoms have gotten worse, but that could also be due to the cold weather, which especially affects my eyes and the watering.

I'm sorry you continue to develop such health problems, and as I've said before I hope you find relief soon. Keep hoping! :) I don't know what the future holds for me, but I do hope I keep improving. I don't know what to make of some of my symptoms that seem to be getting worse. My energy levels are much better though since I've been supplementing with B12 and B complex.

Hello David,

I am experiencing a similar situation and I found this thread, after these three years how is your current condition, hope fully better,

Want to share with you my experiences hopefully you see this message

Hi there,

I'm sorry to hear you're in a similar situation to me and that you had to seek our this thread. I haven't even looked at it in years. But since you asked about it, I'll try my best to look it over and write an update about my disease and to say where I've at now with the medical care I'm getting, which is really no medical care. Here is something in the meantime that I wrote on here recently, though it only touches on my disease per se: https://www.neurotalk.org/peripheral...europathy.html.

Feel free to share on here or to message me. I'm not on here as much these days, but I try to check now and then.

Wishing you a good day,
Dave

David, I have had some ups and downs with this, unfortunately more downs, please give me your email so I can share with you what usually works for me and seems to affect, reading forums this is the time I find the most similar case to mine. I have sent you the invite on neurotalk to friends as well

Hi George

Just to let you know we don't recommend anyone give their email address in posts, as these are picked up by Google & other search engines and so the chance of unwanted spam can increase!

You will soon be able to use our private messaging system, and that is the safest way to communicate if you don't want to have your discussion posted on the forum, although we do appreciate when members share in posts, as that also helps others.

How can I use the private messaging system, ??

After you have a few posts as a new member, private messaging open up for you.

Our FAQ section gives details on how to use PM
https://www.neurotalk.org/faq.php?fa...ivate_messages

Hi George,

Sorry to see you here. Yes, feel free to send me a private message when that option is available to you. I've accepted your friend request though I never did figure out what the use of that is other than to keep track of people you want to keep track of. I'm not on here as often these days but I'll try to check in more.