Hello David,

I am experiencing a similar situation and I found this thread, after these three years how is your current condition, hope fully better,

Want to share with you my experiences hopefully you see this message

Hi there,

I'm sorry to hear you're in a similar situation to me and that you had to seek our this thread. I haven't even looked at it in years. But since you asked about it, I'll try my best to look it over and write an update about my disease and to say where I've at now with the medical care I'm getting, which is really no medical care. Here is something in the meantime that I wrote on here recently, though it only touches on my disease per se: The Amazing Benefits of CBD: The Non-Psychotropic Cannabinoid and Neuropathy.

Feel free to share on here or to message me. I'm not on here as much these days, but I try to check now and then.

Wishing you a good day,
Dave

David, I have had some ups and downs with this, unfortunately more downs, please give me your email so I can share with you what usually works for me and seems to affect, reading forums this is the time I find the most similar case to mine. I have sent you the invite on neurotalk to friends as well

Hi George

Just to let you know we don't recommend anyone give their email address in posts, as these are picked up by Google & other search engines and so the chance of unwanted spam can increase!

You will soon be able to use our private messaging system, and that is the safest way to communicate if you don't want to have your discussion posted on the forum, although we do appreciate when members share in posts, as that also helps others.

How can I use the private messaging system, ??

After you have a few posts as a new member, private messaging open up for you.

Our FAQ section gives details on how to use PM
https://www.neurotalk.org/faq.php?fa...ivate_messages

Hi George,

Sorry to see you here. Yes, feel free to send me a private message when that option is available to you. I've accepted your friend request though I never did figure out what the use of that is other than to keep track of people you want to keep track of. I'm not on here as often these days but I'll try to check in more.

David, another question I have read your CBD oil post and I am about to try that, but I would like to ask you, are you still trying Keto diet? I have been trying that in a while and I am trying to figure out if it causes any improvement or not because it is difficult to follow, besides I have lost more weight than I would like to.
And what about your muscle weakness, my muscles dont have the same resistance and start to shake when I am remain in a same position, but I can still lift some weight and run.

I hope the CBD helps you like it has helped me. As for the Keto diet, it was the best for me, but it was very difficult to stick to. Let me elaborate. It reduced many of my symptoms and I felt good on it. But it was a mixed bag. In addition to being difficult to stick too, because without carbs I often had low energy (though not always), my uric acid serum levels went up though I'm not certain of the connection, and I would shake every day. I'm not sure why the latter would happen but likely because I didn't have enough carbs in my body. I have some other theories. I would say it's worth trying to be sure. I think I want to go back and try it again for another 6-12 months and see how it goes this time. I'm now eating more carbs and even sometimes have grains, though that usually means just rice, never any glutenous, and no dairy, and my symptoms are worse. But I never shake or vibrate like when I was on the Keto diet.

As for the muscle weakness and shaking, yes it happens to me too. When I try to do strength training, say some core exercise like a plank, and I have to stay in one position with my muscles engaged, I shake and sometimes it gets violent. In the next few weeks I'm going to try to get back to the gym and to workout with weights more like I used to. I have to be careful. I think it's the stabilizer muscles that are most effected. I have pure small fiber neuropathy, but as my neurologist pointed out more and more research is showing that SFN does in fact damage muscle tissue and it's not so cut and dry with small fibers having no connection to muscle tissue. But it doesn't seem to damage large muscle tissue to be sure.

Exact same thing happens to me, some strength positions my muscles start shaking, other think that bothers me a lot is allodynia, with my jeans or the bed sheets, I am not trying keto anymore because I am not sure if it actually works, but I am paleo, I am trying prolonged fasting as well since I read a lot of benefits including inflammation markers reduction, I will let you know how that works. Will start fish oil supplements, CBD oil and b12 supplement , I am tired of going to doctors so I will focus on getting better not getting a diagnosis.
As you said SFN should affect muscles based on my symptoms, also I read that veins are controlled by the small nerves so might be the case that not enough bloods go to the muscles, just a theory after I read a lot of info,
hope you are better these days!!