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12-17-2015, 07:13 PM | #1 | |||
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I thought I'd give everyone an update on my situation.
If you don't know my backstory, see my posts on these threads: http://neurotalk.psychcentral.com/sh...highlight=lyme http://neurotalk.psychcentral.com/sh...77#post1187777 I just got the call tonight that my Lyme test was positive. This shouldn't be a surprise for me, but I'm also a little shocked and emotional. It's been a long road of dealing with medical professionals that didn't know what was wrong with me and I even had one doctor tell me to get a therapist because he didn't believe my symptoms. The test I took was the iSpot by Neuroscience. I had to take 6 weeks of antiobiotics before I took the test. I was also started on Low Dose Naltrexone at the same time. The burning in my feet had greatly reduced within 2 weeks of starting those drugs. I originally attributed the improvement to LDN alone, but perhaps it was the antibiotic given my positive Lyme test. The clinic that I went to is very knowledgeable with Lyme and neuropathy. They are also going to look for other causes for my symptoms because it might be more than just Lyme disease. I did have some other tests that showed my inflammation is high, but it did not point to anything specific. I think I'm in pretty good hands.
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"Thanks for this!" says: | bluesfan (12-18-2015), DavidHC (12-17-2015), glenntaj (12-18-2015), hbielski1905 (12-18-2015), indigo (12-18-2015), janieg (12-17-2015), jurgen975 (12-21-2015), kiwi33 (12-17-2015), KnowNothingJon (12-18-2015), mrsD (12-17-2015), stillHoping (12-19-2015), zkrp01 (12-18-2015) |
12-17-2015, 07:30 PM | #2 | |||
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Member
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Your hard work and perseverance has paid off. It does sound like you are in good hands and that is wonderful.
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12-17-2015, 07:44 PM | #3 | ||
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Member
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Wow that is great!
Why did you have to do abx for 6 weeks first? |
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"Thanks for this!" says: | madisongrrl (12-18-2015) |
12-17-2015, 08:09 PM | #4 | |||
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Senior Member
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Wow! I am so happy to see you finally got some answers. Kudos to you for following your wisdom and being persistent. I'm sure that wasn't easy.
I hope you continue to improve every day.
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"Thanks for this!" says: | madisongrrl (12-18-2015), mrsD (12-17-2015) |
12-17-2015, 09:02 PM | #5 | |||
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Wisest Elder Ever
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Amazing! Your persistence is an inspiration to others
here who continue to suffer lazy and Arrogant doctors who refuse to consider Lyme and refuse to learn about it. I hope you will stick around and continue to Help other members here.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | madisongrrl (12-18-2015), zkrp01 (12-18-2015) |
12-18-2015, 01:08 PM | #6 | |||
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Member
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Oh, I will stick around. I'm fairly certain that I have some neurological damage that might never repair. And there is always the possibility that having Lyme and my neuro symptoms are a coincidence.....probably not, but you never know.
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Last edited by madisongrrl; 12-18-2015 at 02:09 PM. |
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12-18-2015, 01:04 PM | #7 | |||
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Quote:
I've always heard people say that Lyme hides and tries to evade the immune system. I never thought this was true until I started looking at what some of the Lyme researchers have been publishing. Dr. Eva Sapi out of the University of New Haven has a paper that shows that the Lyme bacterium changes shape and does hide in biofilms. The University of Yale Medical school showed that Lyme proteins remained in mice who had Lyme and were treated with antibiotics. There are lots of small studies out there showing stuff like this, which makes this so complicated to understand...lots of grey area, for sure. Unfortunately, Lyme research is small and it is not well funded. And the research is not conducted in humans because no IRB would ever approve that study. It's really why we don't know as much about it as we should.
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12-17-2015, 09:26 PM | #8 | ||
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Member
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While I'm sorry to hear this, it's also wonderful news. At least now you know one of the causes and part of your struggle is over. What's next? More antibiotics? Regardless, I wish you the best in dealing with this and hopefully getting some improvement. I also hope that any and all other causes come to light.
I'll look back through your posts and see why you suspected Lyme, since perhaps I should be looking for that too. I'll also look to see what tests I can have done, ideally one where I don't have to take so many antibiotics. But perhaps that's unavoidable. Thanks again for updating us. |
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"Thanks for this!" says: | madisongrrl (12-18-2015) |
12-17-2015, 10:45 PM | #9 | ||
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Madisongrrl, whenever you get a chance, I'd be grateful if you would tell us why you (may) think the test you took is more accurate than the Western Blot and others. Years ago I got a bite on my ankle and till today I don't know where it came from. I don't think it's connected, but I did live in a Lyme ridden place, I've just learned. This makes me wonder. But given what I've just read about diagnoses and even if done accurately the possibility of healing, I'm somewhat frozen and not sure how to proceed. I will write the other person, Leeza Jane, I believe her name way, who found out she had Lyme years later. Thanks again for sharing and also for making me think about this.
Last edited by DavidHC; 12-18-2015 at 01:21 AM. |
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12-17-2015, 11:30 PM | #10 | |||
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Grand Magnate
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Madisongrrl, that is excellent news. I am glad that your perseverance has paid off and I hope that the combination of antibiotics and Naltrexone continues to help.
You are an NT member who I really admire because of the knowledge and experience that you readily share here .
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"Thanks for this!" says: | madisongrrl (12-18-2015) |
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