Janie, you've been though a bunch of medical analysis. And if you are satisfied that everything else was properly ruled out, then Dr. Jaller seems like the guy to see. My new clinic was happy that I'd been to the Neuro, Rheumy and ENT, and told me it made their job easier (and probably more affordable for me). I travel an hour each way to see my new medical team, which is not so bad compared to some.

I'm feeling better since I started LDN and antibiotics in October. I really, really am and it's totally amazing. The burning sensations have reduced somewhat and I feel a little more human everyday. I'm still getting that cold skin, wet skin, hypersensitive skin, tingly skin thing going on....but I'll take it for now. My facial pain has even reduced a little.

I'll be getting some toxicity screening done because they want to see if there is anything else that is playing into all my symptoms - since I used to be chemist and all. I'll make sure to post all my tests and results that are upcoming in the next few weeks. I hope others will find a few helpful nuggets in my medical story that they can apply to their own case. :)

The Lyme Disease solution is a highly touted book, just like the Why Can't I Get Better book by Dr. Horowitz.

I came across this interesting combination that you might find useful:

http://www.amazon.com/gp/product/B00...A3GMBSXF8XL5PX

I just found this article that was published in BMJ. Absence of evidence is not evidence of absence. David, I know you will enjoy this. :p

http://www.ncbi.nlm.nih.gov/pmc/arti...550545/?page=1

The key piece of this paper is at the end - statements about absence of evidence are commonly made for things like harmful effects of pesticides in drinking water or links between EMF and cancer etc. It goes on to say, "Can we be comfortable that the absence of clear evidence in such cases means that there is no risk...."

It finishes with a statement about looking beyond the p-value (statistical significance) and we need to seek evidence that proves A is NOT related to B, when it comes to widespread exposure of a population to something that could be harmful.

Good freaking stuff. I think is especially relevant to all those that are still searching for a cause to their symptoms.

For me, not treating the Lyme disease is much much worse than worrying about the effects of the antibiotics. I have gone with untreated Lyme for decades and am now very ill from it. It caused heart rhythm problems, eye blindness problems, etc. on top of the neuropathy. I had to have a cardiac ablation and ended up in the ER three times with my heart rhythm. So I prefer to treat the Lyme with antibiotics and get rid of it!

Just great stuff. Thanks for sharing. Too bad no one is listening due to competing (almost always financial) motivations. It should preface a new handbook/manual for physicians and scientists.