Just wondering if anyone has any experience with massage helping with MMN?

I had a deep tissue massage for my Ulnar Nerve entrapment a few years ago and it helped immensely, so much so I cancelled my appointment at the hand clinic in Melbourne.

Now I am about to start IViG treatment to get a diagnosis of MMN and wondered if regular massage would assist with the aches in my right arm. I also have mild scoliosis and do stretching exercises to assist with pain.

Thanks Carol.

It would help if you spelled out what MMN stands for. I always thought you had to have an autoimmune diagnosis before you could get IVIG. I have had nothing but help from Chiro's. Too expensive to do too long. respectfully, Ken in Texas.

Multifocal Motor Neuropathy , I have in both arms & legs . Very rare. Jim

MMN= Multifocal Motor Neuropathy, it is very rare and very hard to diagnose.
Neurologists start people on IVig treatment when they cannot conclusively diagnose MMN as it is the only treatment that helps the disease. If patients have a positive experience with IVig then doctors Diagnose MMN but only after they have ruled out everything else.

Dear Carol,

I had to look up MMN.......I so see your sensory nerves are not affected, so I enthusiastically recommend massage.

I have autonomic and sensory neuropathy.....very different. My symptoms came on rapidly last April. Some have improved, however my pain is worsening. Given all I am going though...including grief and depression about my lost profession, health, and life....my most effective treatment is yoga and massage. My son and husband chipped in, and my teacher/masseuse comes to my house three days a week.

I have been virtually bed-bound, however I have seen real improvement in strength, balance and spirits in just six weeks.

Pick carefully...the first person we hired had once been my fellow student and teacher. She was stuck on protocol and was quite insensitive. I was in agony during her massage! I was once an excellent yoga practitioner, and she could not wrap her head around my decline.....quite awful in every way!

My current teacher is just a natural healer....I am usually cynical about such things, but she has "the touch." I am very ill now (dysautonomia can create havoc with all systems), I physically feel sort of shattered, and I have significant fatigue and muscle atrophy, but I often remember what it's like to feel well right after a session. I even see some change in my muscle mass now.

My dysautonomia doc is thrilled I am doing this. My Neuro says there's nothing like the "laying on of hands." Pricy, but I save so much money now (can't eat out, shop, sit through a movie....etc. etc).

So check with your docs and go for it!