I'm just wondering if anyone has tried this and if so if it did anything. I take pretty much the same vitamins/minerals that is contains.

I'm thinking it makes no sense to waste money on an infusion when I can take the same vitamins (and do) at a fraction of the cost. However, I would still be interested in hearing personal experience.

I could not find any scientific type proof on it when I searched.
Thanks!

I guess it depends on what/why you are trying it for. John had one years ago and he did feel pretty good after it. He didn't pay attention to how or if it mpacted his PN. He was very fatigued at that time and found the cocktail helpful for that and just a better sense of wellbeing.

These cocktails may have different recipes. I've known a few people who had glutathione in theirs. I'd expect that type to be
more helpful than just vitamins and minerals.

Make sure you know the pharmacy who makes it up...that they don't have reported problems with sterility etc.

I agree about the glutathione. I've been thinking about finding a holistic practitioner that could give me glutathione infusions. I have some MTHFR mutations along with SFN. Glutathione seems to be a potential common link between the two - and also hard to assimilate orally.

Thanks for the idea Mrsd and Ragtop262. The place I'm looking into for hyperbaric oxygen treatment does glutathione infusions.

I have one MTHFR mutation and my Integrative doctor started me on glutathione. I had a bad reaction to it. My legs felt really weird and it was hard to walk. I am not sure what was going on. I had tested with high levels of lead, so it is possible the glutathione started a detox process and I felt that. Or I could possibly have other mutations that can't tolerate all that sulfur. I recommend starting slow with this. I have to do further research to figure out why this happened to me.

Hi Pinkynose,
I did a series of the Myers Cocktail several yrs ago....for 2 months, 2 per week, and sorry to say, they did not help my neuropathy. and we're quite expensive. However, my neuropathy is from Lyme Disease and is predomanintly(actually, at its worst) in my right face/head/jaw neck area. I only mention it because it is not a common cause of neuropathy although many folks with long term or untreated Lyme Disease can get very serious neuropathy issues that can be permanent.
The doctors office that did the MC called them a "push" because it was in what looked like a huge syringe and it was injected slowly into a vein over 8-10 minutes.

I have also tried glutathione pushes without much luck.

Honestly, aside from Neurontin and Lyrica, what has helped the most is a very alkaline diet and completely staying away from sugars and junk food. I know, not easy but it helps. Sugar really seems to ramp up my neuropathy.

I wish you the best in your research.

Take care,
D.

I have the same thing in the left side of my face - throat, jaw, face, eye. Did your facial pain reduce any with treatment?

I'm taking topical glutathione and will be getting an IV in a few weeks. I'm not holding my breath, but we will see what happens.

Hi Madisongrrl,,
In the good news dept, yes, I did extensive treatment with antibiotics(abx) and it completely eradicated the neuropathy but, every time I stopped abx, the pain eventually came back.

I got LD a long time ago, started with symptoms in 1988-89 but wasn't dx'ed until end of 1991(3 weeks before my wedding!). I had great docs, they didn't call them LLMD's back then but, they were. They had me stop work completely and just focused on treatment. I did abx on and off, for 10 yrs. I eventually had to stop abx permanently because I was getting c.diff infections that became life threatening.

So, the neuropathy is now permanent but that is because of the delay in treatment. I know you had a recent dx of LD.
Please feel free to PM about anything. I know it is frustrating.
My best,
D.

Thanks Diandra. Besides a few supplements that I take for a deficiency and/or inflammation making my diet more alkaline and specifically restricting sugar has been a huge help. I believe upping my good fat has been helpful as well. Meditation helps me and probably Gabapentin, but I'm hoping not since I just started weaning off.

The doctor's are not sure what has caused my symptoms and would not have suggested dietary changes as I'm otherwise healthy, not overweight or diabetic. However, mainly through participation in this group I have realized that even without a dx if I want to minimize my symptoms I need to limit additional stress on my nervous systems and organs and give them nutrients that may help.

I continue to research but I usually try to find more scientific type studies now and vet them here. That's not as easy with supplements but I do try to be more selective and discerning.