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Old 12-29-2015, 11:19 PM #1
panther panther is offline
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Default SFN Symptoms - this is how it started

day 1 - Like RLS ..I was not able to sleep unless I kept my legs active
day 2 - same situation - went to ER . had panic kind of attack at the ER. not sure if this is connected with sfn

day 3 to day 10 - toe twitching and electrical jabs

now currently it has reduced touch wood,,...

have started the regimen from day 1 ...
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Old 12-30-2015, 03:11 PM #2
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Default hi

anybody experienced these symptoms
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Old 12-30-2015, 04:26 PM #3
Patrick Winter Patrick Winter is offline
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Default

Quote:
Originally Posted by panther View Post
anybody experienced these symptoms
I had electrical jabs. Haven't had the pothers. I have had panic attacks for decades so i don't see a relation as they are hereditary for me.

My symptoms were burning, prickling, deep pain to the bone and electrical feeling. Currently numbness and sometimes burning, the others seem to have subsided a bit.
__________________
Diagnosis: Idiopathic Small Fiber Neuropathy (Statin Induced)




• R-Lipoic Acid: 100mg - 300mg Daily
• Acetyl-L Carnitine: 1500mg Daily
• Vitamin B12: 1000 mcg Daily
• Magnesium 500mg Daily
• Grape Seed Extract 200mg Daily
• Benfotiamine 300mg daily

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Old 12-30-2015, 04:38 PM #4
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Default proximal biopsy

did you have reduced numbers in the thigh as well?

Quote:
Originally Posted by Patrick Winter View Post
I had electrical jabs. Haven't had the pothers. I have had panic attacks for decades so i don't see a relation as they are hereditary for me.

My symptoms were burning, prickling, deep pain to the bone and electrical feeling. Currently numbness and sometimes burning, the others seem to have subsided a bit.
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Old 12-30-2015, 06:22 PM #5
Patrick Winter Patrick Winter is offline
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Quote:
Originally Posted by panther View Post
did you have reduced numbers in the thigh as well?
My results (5/5/2015):

Sweat Gland Nerve Fiber Density


A. Rt Calf: 30.4 (Less than 36.5 is considered abnormal) (this is where the diagnosis of small fiber neuropathy came from)
B. Rt Thigh: (the biopsy did not yield a readable sample, but since the calf showed it that was enough for diagnosis they said.)

Epidermal Nerve Fiber Density

A. Rt Thigh: 10.08 (less than 6.2 considered abnormal - below 6.8 is low normal)
B. Rt Calf: 5.41 (less than 3.7 considered abnormal - below 4.5 is low normal)

I know that doesn't look so bad, but I am in great pain every day.
__________________
Diagnosis: Idiopathic Small Fiber Neuropathy (Statin Induced)




• R-Lipoic Acid: 100mg - 300mg Daily
• Acetyl-L Carnitine: 1500mg Daily
• Vitamin B12: 1000 mcg Daily
• Magnesium 500mg Daily
• Grape Seed Extract 200mg Daily
• Benfotiamine 300mg daily


Last edited by Patrick Winter; 12-30-2015 at 06:58 PM.
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