[antonina]

as of 1/1/16, medical marijuana is legal in nys. i am really looking forward to trying it. i am going to ask my pcp for an rx but i would like to provide her with some info derived from actual patients who have been helped by it

my question: are there any forms/strains/amounts of MM that are helping with the usual PN symptoms...burning, pain, numbness, weakness, balance issues? (btw, nys prohibits smoking it but vaping seems to be OK.)

when i smoked MJ in my youth i would sometimes get very anxious & paranoid. the best times happened when i found everything hilarious & got the munchies.

i would love to hear your experiences and any advice/recommendations you have to offer. TIA!

[janieg]

You might want to check out this thread:

http://neurotalk.psychcentral.com/sh...d.php?t=223173


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[SylvieM]

Just wish to let you know that NYS has the most restrictive law in US: prescribing docs must complete a 4 hour certification course ($250). My neuro, at a research university, is willing, but has to clear it with his department. May be some time before we have access. Also, it's only available in oil or vapor....which does not allow the calibration of smoking (I do have a smokeless pipe).

I wrote more on the cited thread...but my dwindling stash has been wonderful for neuropathic pain. I got it through a contact my PCP gave me (she has moved out of state and contact gone). It is very mild....no anxiety.

[antonina]

Originally Posted by SylvieM

Just wish to let you know that NYS has the most restrictive law in US: prescribing docs must complete a 4 hour certification course ($250). My neuro, at a research university, is willing, but has to clear it with his department. May be some time before we have access. Also, it's only available in oil or vapor....which does not allow the calibration of smoking (I do have a smokeless pipe).

I wrote more on the cited thread...but my dwindling stash has been wonderful for neuropathic pain. I got it through a contact my PCP gave me (she has moved out of state and contact gone). It is very mild....no anxiety.

i just read nys dept of health MM site and they have erected lots of hoops mds need to jump thru. looks like i won't be using it anytime soon

here it is:

https://www.health.ny.gov/regulation.../practitioner/

thanks Sylvie for enlightening me. is your neuro in nyc? if so, would you be ok sharing his/her name in a pm? i am still on a quest for one.

[SylvieM]

And they call it "the Compassionate Care Act!"

[KnowNothingJon]

When I see my neuro I am asking if he is certified and if not, who he may refer me to who might be so we can start our six months of care as required... it is very restrictive.

I think my neuro might be responsive, but he might not be. I'd like it as a legal tool in my arsenal.

I'm about a third down in mass since this struck me hard, I've taken numerous steps to mitigate my pain, discomfort and disability these last few years. I've tried many of the suggested meds, some for years. The side effects were not worth the relief or they simply didn't agree.


My experience with marijuana has been that it takes the edge off on par or better than tramadol (which I take) with none of tramadols side effects plus a little appetite boost- which these days I can use. I don't have any valid scientific data, nor current legal data.

When I visited Colorado 2014 Christmas I sampled edibles a bit. I enjoyed the beverage I tried a lot. I was unable to try CBD heavy stuff as it was behind the medical wall where I was, but that is what interests me, well with some THC.

I am happy for you that your neurologist is in on trying. It will be interesting to see if mine is already open to it or will be. He seems to like my drive. I guess we will see if that has an end in the clearing of medical marijuana.

Best of Luck,

Jon

[MorganPat Disanza]

I brought the CBD oil over the Internet. I'd figured I'd try anything. I think I paid about $39.00 plus shipping. So far I don't really feel any different. There's no side effects from it. But they also say that it will take a month or more before you feel any effects from it. I figured I'd try it a few months. If it works it will be great, if it don't at least I know I tried.


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[SylvieM]

Jon,

I am extremely sensitive to medication, and apparently my sensory neuropathy and dysautonomia are iatrogenic in origin. I just started a tiny dose of Cymbalta three days ago. Many side effects....like my pupils are dilated, which has not stopped me from reading all about the severe withdrawal this drug engenders....now have to think if it's worth it. Yet this "dirty" drug is handed out like candy.

Marijuana is so harmless.....to lazy to look up and cite specific research, but the data on the efficacy of cannabinoids for pain relief are in....which is why neuropathy is one of only 10 conditions covered by NYS law.

I just took (inhaled) a little nightly "dose;" for now is the time my pain kicks in, as well as when my various uncomfortable dysautonomic symptoms increase....seems like the pot helps it all. I would love to try it without THC for daytime use.

By the way, I went to UB and spent 15 years in Buffalo...I now miss it terribly....NYC just has lost its charms.....

S

PS..Autonina, I PM'ed the Dr. Info for you.

[SylvieM]

Originally Posted by MorganPat Disanza

I brought the CBD oil over the Internet. I'd figured I'd try anything. I think I paid about $39.00 plus shipping. So far I don't really feel any different. There's no side effects from it. But they also say that it will take a month or more before you feel any effects from it. I figured I'd try it a few months. If it works it will be great, if it don't at least I know I tried.


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I'm not sure if internet CBD oil has active ingredients.....it's marketed as "hemp oil."
Just suggesting this is the reason you don't feel anything....the claim it takes a month to work is highly suspect...so perhaps the real thing might still be of benefit!

[KnowNothingJon]

Cymbalta was a one month no thank you attempt at hslf dose for me. It just felt wrong in so many ways for me. I tried it because it was "next step" and I have a lot of lethargy from this.

So I get what you are saying about it. I have a lower dose of topamax that helps keep the shooting pains down and tramadol helps with the rest. I'd prefer to drop my tramadol useage in favor of mmj. We shall see.