advertisement
Reply
 
Thread Tools Display Modes
Old 12-31-2015, 06:03 PM #1
panther panther is offline
Junior Member
 
Join Date: Dec 2015
Posts: 17
8 yr Member
panther panther is offline
Junior Member
 
Join Date: Dec 2015
Posts: 17
8 yr Member
Default Thiamin Vitamin B1

I think I might be deficient in vitamin B1. My blood level shows 81 nmol/L.

Ref range is 74-222 nmol/L.

Lower end of normal,. I am not alcoholic. But I do enjoy my drink every weekend. When this started (Sfn) I did drink more than usual.

Any thoughts?
panther is offline   Reply With QuoteReply With Quote

advertisement
Old 12-31-2015, 06:37 PM #2
DavidHC DavidHC is offline
Member
 
Join Date: Nov 2015
Posts: 732
8 yr Member
DavidHC DavidHC is offline
Member
 
Join Date: Nov 2015
Posts: 732
8 yr Member
Default

For what it's worth I would stop drinking entirely and take at least 300 mg of Befotiamine, the fat soluble and so bioavailable form. I used to drink a lot when my SFN came, and quitting drinking entirely and taking 600 mg of Benfo a day, 300 with breakfast, 300 with dinner, made an immense difference.

Best of luck!


Quote:
Originally Posted by panther View Post
I think I might be deficient in vitamin B1. My blood level shows 81 nmol/L.

Ref range is 74-222 nmol/L.

Lower end of normal,. I am not alcoholic. But I do enjoy my drink every weekend. When this started (Sfn) I did drink more than usual.

Any thoughts?
DavidHC is offline   Reply With QuoteReply With Quote
Old 12-31-2015, 07:10 PM #3
pinkynose's Avatar
pinkynose pinkynose is offline
Member
 
Join Date: Jul 2015
Posts: 506
8 yr Member
pinkynose pinkynose is offline
Member
pinkynose's Avatar
 
Join Date: Jul 2015
Posts: 506
8 yr Member
Default

I'm with David. I am not alcoholic and had not had a drink for at least 5 years before my symptoms started because it began to effect me badly. I was deficient in B1 anyway. I began taking Benfotamine right away. People with a B1 deficiency are at risk for neuropathy and we already have it...
__________________
"Sometimes I've believed as many as six impossible things before breakfast." Lewis Carroll
pinkynose is offline   Reply With QuoteReply With Quote
Old 12-31-2015, 07:22 PM #4
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

B1 is also used in the metabolism of carbohydrates. So eating lots of sugar and high glycemic carbs can use it up.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Joe Duffer (12-31-2015), zkrp01 (01-01-2016)
Old 12-31-2015, 08:26 PM #5
panther panther is offline
Junior Member
 
Join Date: Dec 2015
Posts: 17
8 yr Member
panther panther is offline
Junior Member
 
Join Date: Dec 2015
Posts: 17
8 yr Member
Default

Do the symptoms improve or rather subside if we bring the b1 back up near high normal
panther is offline   Reply With QuoteReply With Quote
Old 01-01-2016, 10:58 AM #6
Patrick Winter Patrick Winter is offline
Member
 
Join Date: Jul 2015
Posts: 269
8 yr Member
Patrick Winter Patrick Winter is offline
Member
 
Join Date: Jul 2015
Posts: 269
8 yr Member
Default

Quote:
Originally Posted by panther View Post
Do the symptoms improve or rather subside if we bring the b1 back up near high normal
Listen to DavidHC above.

I personally can say symptoms WILL improve. Benfotiamine is also very safe in high doses. The body will discard what it doesn't need. Taken in combination with R-Lipoic acid I have gotten great relief and been able to cheat on occasion and have a small treat without having to pay for it with a 4 day flare up. If it's working then I believe your body needs it regardless of what a blood test says which is merely a snapshot.

I like the Life Extension brand of both of the aforementioned products. Doctor's Best is also good, but Life Extension offers more potent dosage which is what helps me. It should definitely help the numbers go back up.

In the end, its better to rely on Supplements than it is Pharmaceuticals if you can. Even though it can be a bit costlier.
__________________
Diagnosis: Idiopathic Small Fiber Neuropathy (Statin Induced)




• R-Lipoic Acid: 100mg - 300mg Daily
• Acetyl-L Carnitine: 1500mg Daily
• Vitamin B12: 1000 mcg Daily
• Magnesium 500mg Daily
• Grape Seed Extract 200mg Daily
• Benfotiamine 300mg daily

Patrick Winter is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DavidHC (01-01-2016), pinkynose (01-01-2016), zkrp01 (01-01-2016)
Old 01-01-2016, 11:52 AM #7
DavidHC DavidHC is offline
Member
 
Join Date: Nov 2015
Posts: 732
8 yr Member
DavidHC DavidHC is offline
Member
 
Join Date: Nov 2015
Posts: 732
8 yr Member
Default

What Patrick said. I plan to also introduce R-Lipoic Acid at some point.

It all has helped me, an over all plan. Vitamins and lifestyle changes work synergistically, so together, and though causation is almost impossible to establish, for me, for Patrick and for many others Benfotiamine has correlated with improved symptoms and maybe healing, though one would need further biopsies and the like to determine that. Let's just say a healthier, more nutrient filled lifestyle via whatever exercise one can tolerate, the proper diet, supplementation, etc. can't do anything but help.


Quote:
Originally Posted by panther View Post
Do the symptoms improve or rather subside if we bring the b1 back up near high normal
DavidHC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
pinkynose (01-01-2016), zkrp01 (01-01-2016)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Copper or B1-thiamin deficiency/ toxicity? Healthgirl Peripheral Neuropathy 7 01-02-2015 02:43 AM
How much vitamin b 12 is safe to take daily if you don't have a vitamin b defecintcy. Tj3590 Peripheral Neuropathy 6 09-20-2012 10:29 AM
Vitamin D SI33 Traumatic Brain Injury and Post Concussion Syndrome 8 08-02-2011 11:37 AM
Vitamin D and Autism/ Vitamin D Council newsletter jccgf Autism 2 02-02-2010 02:50 PM
Vitamin B-6 hoibie@comcast.net Peripheral Neuropathy 4 08-21-2007 11:10 AM


All times are GMT -5. The time now is 05:21 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.