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Old 01-16-2016, 03:33 AM #5
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by zkrp01 View Post
I am sorry that you are dealing with so much. I too have had terrifying balance issues that I always attributed to Peroneal Neuropathy. To this day my feet can get tangled up and I almost trip. I tried U-Tube exercizes for balance and my Chiro gave me some stuff to do next to a wall for emergency handholds. I am always cognizant of the surface I am walking on and any height or consistency changes. It will become automatic. Sand or grass or loose dirt are the worst. I wish that I had good news about the videos or drills but it seems that passage of time was the best medicine and not a cure at that. At least the shower has become more friendly. Good Luck, Ken in Texas.
Thanks Ken, David and Healthgirl. It's horrible not having a name or a reason for our symptoms isn't it?. I'm starting to think that I might never know the cause but I do find that taking an antihistamine at night helps a little and I wake less often with less of the burning pain. I'm wondering if this means that the SFN is part of ab allergic response to something but haven't a clue what this would be - not environmental because my environment changes a lot just now and my diet is consistently healthy and relatively additive free.

I went into shock when my rheumatologist told me that I don't have a connective tissue disease now so can't blame Sjogrens or RA anymore. My thyroid is supposedly well medicated and I've had lots of other checks but nothjng flags up apart from raised to high inflammation levels. Hey ho. Mat
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases

Last edited by MAT52; 01-16-2016 at 04:18 AM.
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