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Old 01-19-2016, 06:29 PM #1
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Originally Posted by Cliffman View Post
It's interesting Mat that you mention a high "CRP" number in your blood because my Neuropathy started several days after having heart stents. The pain started in my left thumb, then spread to my right hand. I was referred to my GP, he took blood and the only thing he found was a high "CRP" blood result so he sent me to a Rheumatologist and nothing showed. I wasted several valuable weeks before going to a Neurologist. I wonder if there's some kind of link with Neuropathy and high CRP readings in one's blood?

Several month's later I was given a diagnosis of SFN and since then it has spread throughout most of my body.

Also, I was recently told I have Hashimoto's and the Neuro doc said it could be a possible cause but she does not seem sure. Are they treating yours with meds? They have not given me anything.

I hope you find out more and get some needed relief soon.

All the best,

Cliffman
Well I have had mine for five years Cliffman and been under rheumatology for all that time. I live in Scotland and the NHS is inflexible about people meeting criteria for referrals if not obviously falling under a specialism. So, on the basis that they believe my bloods are adequately normal for a hypothyroid person taking Levothyroxine - they won't refer me to a thyroid specialist.

RA is a rheumatic disease so I've been treated aggressively for this and monitored for inflammation. Once the joint inflammation went away they just shrugged off the face that inflammation or infection was still showing in my blood. But remember that small fibre neuropathy isn't a disease in itself but is often part of a disease process.

They don't seem to think that neuropathy would cause inflammation unless it's immune mediated - which I'm quite certain mine is. So if it's not caused by my RA or any other connective tissue disease such as lupus - then to my mind it must be linked with thyroid disease or something endocrine. Neurological conditions don't usually cause an inflammatory process unless they are part of a connective tissue disease. With your heart problems, high CRP, hypothyroidism have you or your doctors considered Lupus or Scleroderna or Vasculitis I wonder? Worth asking about if not abc getting your autoabtibodies taken. All these autoimmune diseases can cause heart problems.
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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