Well, it's about time that someone listened and understood what you have been going through. I only hope that his notes to the rheumy will open a door for more exploration as to the root of this problem...and then proper treatment.

As for your feet, and difficulty with flooring, surfaces etc. Has anyone done a check on your proprioception? The test is simple and would include the doctor having you close your eyes while he moved a toe up or down...and you have to tell him which direction it moved? Same for fingers. If you are unable to get these correct, he would move up and do the same for ankle and wrists. Has anyone done this test? It may be that your proprioception is affected, which definitely causes problems with balance and surface changes. It's basically not being able to tell where your feet are in space...so in order to not fall, you HAVE to look at them while walking. just curious if this is playing a role in your current situation. It is yet another aspect of SFN.