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According to the refferal and the test's results I am sure that I had a skin biopsy and not a nerve biopsy. From what you wrote here and what I have previously read in this forum , it seems that my skin biopsy was done by a butcher!! It makes me furious :mad: :mad: :mad: |
Butcher indeed! If that's the case, you have every right to be furious. So sorry. :(
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I had the sural nerve biopsy in 1997 and it is VERY invasive. I don't think she had this because the sural nerve biopsy would be measured by cm not mm. My incision is about 5 cm long and they actually took 4 cm of sural nerve. No way this could have been done within 4-8 mm.
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Also, the test (if done properly) should not be invasive; https://www.youtube.com/watch?v=e7lCzgx3xnU Cliffman :) |
way back in 2003 after my PN was confirmed by emg/ncs, the first test Columbia Presbyterian in Manhattan wanted to do was a sural nerve biopsy.....this was before any blood tests, mri's etc would be ordered. this didnt sound right to me so i did some research and talked to people on an old version of a board like this and as a result ran from columbia presbyterian and went to a different neurologist. They were definitely cut happy, at least at that time.
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