Possible reason for incorrect skin biopsy results - Therapth

St George 2013 · 01-27-2016, 02:17 PM

Quote:

Originally Posted by en bloc

In autoimmune based neuropathies, it can appear with or without abnormal morphology.

I am a bit surprised that you only had ONE site biopsied. There is no way to determine length or non-length dependent neuropathies unless you do more than one site. Why did they only do one? That is pretty rare, I think.

I am pretty sure other large, well known facilities, will accept outside samples for re-review. I just know for sure that Hopkins does because mine was done there and my neuro mentioned it in random conversation. I think Glenn has also brought this up before and I believe he listed several in the NY area. But I don't know about TX, David.

I was only 4 1/2 months into my SFN journey and running around like a chicken with its head cut off trying to find out what was wrong with me when I asked my foot and ankle dr to do a skin punch biopsy.

He agreed and took two samples right above my ankle and no where else. My results from just that one biopsy site were 0...no A and C fibers left. (Bako Labs)

This was done before I joined this wonderful site and I had very little knowledge of what to ask for. If I had known I would have asked for several sites to be tested.

Did he only do one site because he's a foot/ankle dr ? Did he only do one site because I was very new to whatever was happening to me and he just did the one site because I asked for the biopsy myself instead of him suggesting it ? Because I was only complaining of my feet ?

I have no idea and I'm in Georgia, USA

Guessing I got the short end of the stick ?

It has now traveled to my legs, arms, hands and mouth area.

Just wanted to let you peeps know my biopsy story.

Debi

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