advertisement
Reply
 
Thread Tools Display Modes
Old 01-25-2016, 04:59 PM #1
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
8 yr Member
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
8 yr Member
Default Just checking in

Hi guys, I just wanted to check in - I haven't really posted much in the past month or so. The kids were home from college, and I got some home winemaking equipment for Christmas (a new hobby that has taken my mind off my SFN issues for a while).

Well, the kids went back to school yesterday and the wine is aging - so not much to do on that front.......... My SFN symptoms continue to be stable. (After a 6 month "acute onset" period, my symptoms haven't gotten any worse for the past year. And, certain aspects have gotten better over that time.)

My neuro appointment last month was same old, same old. "Keep taking the gabapentin and come back to see me in 6 months. Call me if you want to up the dosage." Actually, I'm trying to taper down my gabapentin dosage - very slowly. I've gone from 1800 to 1500/day with no major change in symptoms. I'll probably drop to 1200/day over the next couple weeks to see how that will affect me.

Overall, my attitude toward life is much better now since I'm starting to believe that maybe this disease won't completely kick my butt after all. A year ago, I didn't think I would be working much longer based on how quickly my symptoms were progressing. Now, I'm hopeful that I can keep going for quite a while. Of course, I'm still aware that something could always happen to flare this thing back up at any time - but as time goes on, I think that's getting a little less likely.

And, I just wanted to thank everyone again for their support and suggestions. Although I'll never know for sure, I think the use of supplements as recommended here - along with cutting down on sugar, getting some exercise and reducing stress has made a big difference in how I feel.

I continue to hope and pray that everyone else here will find some peace and relief from their symptoms as well.
Ragtop262 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bluesfan (01-25-2016), countrycakelady (01-28-2016), DavidHC (01-25-2016), dogwalker (01-25-2016), EnglishDave (01-25-2016), glenntaj (01-26-2016), Healthgirl (01-26-2016), janieg (01-25-2016), KnowNothingJon (01-25-2016), MikeK (01-27-2016), mrsD (01-25-2016), northerngal (01-29-2016), Patrick Winter (01-26-2016), pinkynose (01-25-2016), St George 2013 (01-26-2016), SU30boy (02-04-2016), zkrp01 (01-26-2016)

advertisement
Old 01-25-2016, 05:20 PM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Thumbs up

Thank you for being thoughtful and posting your update.

I am glad you are feeling better.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 01-25-2016, 07:20 PM #3
janieg's Avatar
janieg janieg is offline
Member
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
Default

Excellent news, Ragtop! Thanks for coming back and sharing the good news with us.
janieg is offline   Reply With QuoteReply With Quote
Old 01-25-2016, 09:39 PM #4
bluesfan bluesfan is offline
Member
 
Join Date: Jun 2014
Posts: 733
8 yr Member
bluesfan bluesfan is offline
Member
 
Join Date: Jun 2014
Posts: 733
8 yr Member
Default

Hey Ragtop

Thanks for the update - glad to hear you're in some sort of remission and managing okay. Let us know how the gabapentin taper goes (and if there are any flare - ups from the reduced dose).

In the meantime I guess you'll be looking forward to getting the convertible out in summer and heading back to the beach. Happy cruising . . .
bluesfan is offline   Reply With QuoteReply With Quote
Old 01-26-2016, 08:59 AM #5
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
8 yr Member
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
8 yr Member
Default

Quote:
Originally Posted by bluesfan View Post
Hey Ragtop

Thanks for the update - glad to hear you're in some sort of remission and managing okay. Let us know how the gabapentin taper goes (and if there are any flare - ups from the reduced dose).

In the meantime I guess you'll be looking forward to getting the convertible out in summer and heading back to the beach. Happy cruising . . .
I am indeed looking forward to summer, but snow is falling and the snow plow just went by
But the battery tender is plugged in - so all I have to do is pull off the cover, drop the top, and fire it up once the weather gets warm
Ragtop262 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bluesfan (01-26-2016), DavidHC (01-26-2016)
Old 01-27-2016, 10:57 AM #6
zkrp01 zkrp01 is offline
Member
 
Join Date: Mar 2014
Posts: 550
10 yr Member
zkrp01 zkrp01 is offline
Member
 
Join Date: Mar 2014
Posts: 550
10 yr Member
Talking Glad to hear

Quote:
Originally Posted by Ragtop262 View Post
I am indeed looking forward to summer, but snow is falling and the snow plow just went by
But the battery tender is plugged in - so all I have to do is pull off the cover, drop the top, and fire it up once the weather gets warm
that you are dropping the Gaba. That means that you are either getting better or tougher,haha. I quit it and noticed a couple of times when I thought that the Gaba might have been helping. I didn't miss the fog and sentences left unfinished while in conversation. Here in Texas there are days when a jacket and 60+ degrees means I can ride my bike enough to keep the battery up. My legs are not what they need to be but I still ride with a fair amount of trepidation. My neighbor has a 1962 Valient(slant six fame) with a 318 crammed in under the hood. I think I might try to swap for it. My bike is like candy and red to go and he might be tired to throwing money into his project. If my summertime fantasy happens I will name the car RMPSHKR. Keep the shiny side up, Ken in Texas.
zkrp01 is offline   Reply With QuoteReply With Quote
Old 01-27-2016, 03:44 PM #7
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
8 yr Member
Ragtop262 Ragtop262 is offline
Member
 
Join Date: Mar 2015
Location: Midwest
Posts: 381
8 yr Member
Default

Quote:
Originally Posted by zkrp01 View Post
that you are dropping the Gaba. That means that you are either getting better or tougher,haha. I quit it and noticed a couple of times when I thought that the Gaba might have been helping. I didn't miss the fog and sentences left unfinished while in conversation. Here in Texas there are days when a jacket and 60+ degrees means I can ride my bike enough to keep the battery up. My legs are not what they need to be but I still ride with a fair amount of trepidation. My neighbor has a 1962 Valient(slant six fame) with a 318 crammed in under the hood. I think I might try to swap for it. My bike is like candy and red to go and he might be tired to throwing money into his project. If my summertime fantasy happens I will name the car RMPSHKR. Keep the shiny side up, Ken in Texas.
Yeah, four wheels might be a better bet than two. Been quite a while since I rode a motorcycle. Used to have a Gold Wing before I got married/had kids, etc..........
That Plymouth Valiant would be a nice car - kinda quirky, but cool at the same time
I've had my Camaro since 1997. When the kids were growing up, they called it "Dad's Black Car" - and that name stuck. They even bought me a custom license plate frame with that name on it.
Ragtop262 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
zkrp01 (01-29-2016)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Just checking in hippiechick Survivors of Suicide 1 05-02-2013 07:03 AM
Checking in Mari Bipolar Disorder 6 07-08-2011 05:03 PM
Checking in to see how everyone is doing lostmary SCS & Pain Pumps 1 03-27-2010 08:40 AM
Checking in.. Abbie Survivors of Suicide 11 07-26-2008 03:04 PM
Checking in... Abbie Survivors of Suicide 8 06-01-2008 12:53 PM


All times are GMT -5. The time now is 01:42 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.