Hear, hear!

[QUOTE=DavidHC;1195760]

Hi David, i just read the article to the link you posted, I am not sure what it is suppose to mean. I know you had asked me to explain my story but i just haven't had a chance because of my pain caused by my SFN

How are you doing with your pain? It sounds like you believe your neuropathy is caused by some autoimmune deficiency. I have had many many tests none have come back showing any autoimmune disorders. What else could i do to find out what could be causing this SFN? Do you still handle your pain with nutrients listed? i have tried all those with no results, Do you take prescription pain meds? Thanks

Hi Marie,

Sorry to hear that your symptoms are troubling you so much. Please don't feel like you need to explain your symptoms. I suppose when I asked I was just curious given some things you had said. But it's more important that you not aggravate your symptoms. If you like, and can do so, feel free to share.

My pain is there, but more tingling and numbness, twitching, pins and needles, creepy crawlers and the like than burning or intense pain. Things were much worse this past summer. I've since improved, even though it would seem like I have some new symptoms or new areas with the same old symptoms. I've handled my condition entirely with lifestyle changes and supplements. My diet has helped immensely, and I know when I break it. These natural changes and no prescription meds, despite all the offers by various physicians, are what have improved my situation. That's all.

I'm not sure what else you can do, since I don't really know what you've done, if this is what you're asking. I'm sure if you list what tests you've had and what has been ruled out, the very knowledgeable people here can help out however they can. I'm sorry you've come up against a dead end. As far as I'm concerned, if they think mine is caused by something autoimmune and yet can't find a name for it, it doesn't mean it's not autoimmune. Our immune system is quite complex, and conventional medicine has so far put names on what can comparatively be called a handful of immune system disorders. They is so much we don't know about the human body and the immune system. So far they suspect Sjogren's or possibly Amyloidosis for me. Celiac was a suspect too, but they won't be able to test me since I stopped eating gluten months ago.

I hope you have some relief soon.

[QUOTE=Marie33;1195942]