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Old 05-14-2021, 03:14 PM #21
JimD JimD is offline
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Join Date: Jan 2016
Location: Bethel Park, PA
Posts: 12
8 yr Member
JimD JimD is offline
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Join Date: Jan 2016
Location: Bethel Park, PA
Posts: 12
8 yr Member
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It has been 5 years since I have posted here. After initially dealing with this in 2016 for almost 2 years, with good days and bad days, it finally lightened to the point of just having flare-ups that would last a few days and then I would feel completely normal for months until the next flare-up. I learned to live with it. But last April, I had what I thought was a bad flare-up, but it ended up lasting 2-1/2 months until it started fade. Then, same thing, just flare-ups that would last 2-3 days until 4 weeks ago. It started out of nowhere with tingling up to my knee and burning feet. Thought it would go back away but it is not and I feel it is getting worse. As of yesterday I have burning pain above my ankles that feels like sunburn time 10 and it has not stopped since. I am freaking out that this is progressing and now not going to go away this time. I had COVID 6 weeks ago and was thinking it might have triggered this. I have usually been able to wait it out until it subsides but this burning is relentless. I have been taking 1800 mg/day of Gabapentin for a long time now. I don't understand if I had nerve damage and it got better, how it can keep coming and going like this?
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Old 11-05-2021, 05:38 AM #22
ajwinpain ajwinpain is offline
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Join Date: Mar 2012
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ajwinpain ajwinpain is offline
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Quote:
Originally Posted by JimD View Post
It has been 5 years since I have posted here. After initially dealing with this in 2016 for almost 2 years, with good days and bad days, it finally lightened to the point of just having flare-ups that would last a few days and then I would feel completely normal for months until the next flare-up. I learned to live with it. But last April, I had what I thought was a bad flare-up, but it ended up lasting 2-1/2 months until it started fade. Then, same thing, just flare-ups that would last 2-3 days until 4 weeks ago. It started out of nowhere with tingling up to my knee and burning feet. Thought it would go back away but it is not and I feel it is getting worse. As of yesterday I have burning pain above my ankles that feels like sunburn time 10 and it has not stopped since. I am freaking out that this is progressing and now not going to go away this time. I had COVID 6 weeks ago and was thinking it might have triggered this. I have usually been able to wait it out until it subsides but this burning is relentless. I have been taking 1800 mg/day of Gabapentin for a long time now. I don't understand if I had nerve damage and it got better, how it can keep coming and going like this?
Hello JimD. I am newly diagnosed with SFN. Are you finding relief for your last significant flare up? I am definitely finding this is no picnic and the ups and downs are brutal. It’s crazy how this go from feeling good for maybe two months, and then just out of nowhere, boom it’s back.
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