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02-06-2016, 12:03 PM | #8 | ||
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Hi David, Here are some contacts for you: please look up full addresses, for I don't have them ..sorry. The two I contacted: Lawrence Afrin University of Minnesota -Hematology Afrinl@umm.edu His assistant is Georgio Walberg 612-625-9604 I wrote Afrin and Walberg wrote me back--stated Afrin read my letter...nice. Cem Akin Brigham and Women's Hospital, Boston 617-278-0300 (I called and assistant returned call) Other docs: Maria C. Castells Brigham and Womens Colleague of Akin Theoharis Theoharides Also writes with the two above 716-636-6898 And by the way, you know the Afrin article you posted up is on Mastocytosis, a far more serious disorder than MCAS?...I just skimmed it, but will check out page 149. You know you inspired my post...I really hope MCAS is the answer for you. I also had to smile at your sense of ageism (although I get it...how can a big, healthy man complain about obscure, subjective symptoms? ) Yet it ain't easy being a 60-year-old woman who flings around medical jargon. (I'm still working on my patient persona.) I'm so lucky I found a couple of smart, open doctors. My cardiologist is a peach. Yet, I'm still hunting for the elusive smart and empathetic neurologist! En Bloc, Speaking of smart....I again have to thank you. Is your neuro/rheumy Julius Birmbaum at Hopkins' Sjogrens center? My rheumatologist suggested I go there, and I know another patient of his from another forum (perhaps it's you....forum aliases are confounding!). My sister is in Baltimore, so it could be an easy stay for me. I'm eager to see if he'll test you ...perhaps I should see him? . ...I look forward to your message (no rush!). Sylvie |
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"Thanks for this!" says: | DavidHC (02-07-2016) |
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