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02-14-2016, 09:18 PM | #1 | |||
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"Thanks for this!" says: | bluesfan (02-14-2016) |
02-15-2016, 08:15 PM | #2 | |||
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[QUOTE=madisongrrl;1199257]I've been getting better every day. My burning has greatly reduced in all areas of my body.
LDN has seemed to helped with the pain, along with the antibiotics. I take 2.5mg of LDN each night before bed. This might be a good drug for you to try, especially if there is a suspected immune/autoimmune component to your SFN. I've never taken steroids; they are contraindicated with Lyme disease. Madisongrrl, Thank you for responding. I will talk to my Neuro this coming Thurs about the LDN. If I understanding you correctly, Lymes is the cause of your sfn? What did you take that reduced your burning? And does Nortriptyline help your pain. Do you get any SE's with it. I tried Amitriptyline but it caused skipped heart beats. Plus my BP is normal to low, and Doc said it would probably lower it more. I would love trying it after reading what MrsD wrote, that it could have some "nerve healing" affects. Could that be why your getting better? |
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02-15-2016, 09:30 PM | #3 | |||
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02-17-2016, 12:19 PM | #4 | ||
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I dont see the neurologist for another 3 weeks. i have some decent days and some bad. It really is hard to ignore the symptoms. Any tips on that? Im scared to try anything that would affect me during work. Although thinking about my issues 24/7 probably isnt helping. given the sensory nature of this whole thing, any little twinge bothers me now. it may be normal or abnormal but now im aware of every little thing. thats bad. what oral supplements are useful. im taking a bunch but its hard to tell if anything works!
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02-18-2016, 08:28 PM | #5 | |||
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I went to my Doc appt today. Asked the neurologist about Low Dose Naltrexone for my pain and burning. He laughed and said "that stuff doesn't work for your kind of pain". I told him I talked to a few people on this site that use it and have gotten some relief. He said he hardly prescribes it and wouldn't prescribe it for me! I was so mad...I will ask my PM Doc on Monday what he thinks. Wanted to share this with you and others that use this med. I'm reallly getting tired of this pain and these damn doctors!! |
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02-19-2016, 09:23 PM | #6 | |||
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Will it revolutionize your life and cure your pain? Probably not. Might it take the edge off your pain and give you more quality of life? Maybe! It cheap and it has such a low side effect profile that it surely can't hurt to try it out for 6 months.
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Last edited by madisongrrl; 02-19-2016 at 11:06 PM. |
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02-18-2016, 08:41 PM | #7 | |||
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[QUOTE=Marie33;1199448]
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Hi Mgrrl, I wrote to you in another post too. I just wanted to ask you why you thought LDN might be good for me? Today I found out that my SFN may be autoimmune mediated. Neurologist says my Serology report (bloodtests) showed my Carbonic Anhydrase is elevated. So this means I have an Inflammatory autoimmune disease. ( I have no idea what that means). He gave me Medrol Dosepak (Prednesone) to try for a few days. I asked about LDN for my pain and he said he doesnt use it. What are your thoughts. Should I just ask my Pain Management Doctor on Monday? |
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02-19-2016, 09:28 PM | #8 | |||
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Also, are you supplementing with Vitamin D? Did you have your levels tested?
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