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Acute small fiber neuropathy

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Old 05-23-2019, 11:54 AM   #21
JasonS
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Join Date: May 2019
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Default Did you get better

Quote:
Originally Posted by mickeyM View Post
Hi- I'm new to this forum. In early december I had pneumonia for 2 weeks. 2 days after finishing antibiotics I developed hand and arm numbness which last til the end of december. I also had a jello feeling in my muscles. felt weak but weren't. Then that went away and for the past five weeks Ive had burning in my feet when i wear shoes and cold/wet feelings randomly on my arms and legs. like drops of water. I was 100% healthy before this (im in my early 40's) now i'm a wreck... most b/c im nervous and my sleep has been severely impacted. i had a brain mri, cspine mri, every blood test for autoimmune diseases, GBS, celiac dz etc. EMG was normal as was the 5 neuro exams ive had.i went to the best place in manhattan. they said it was a acute small fiber neuropathy.

they stated me on gabapentin at night. helps me sleep a little better and helps with symptoms til around noon the next day. they said be patient it should get better. give it time etc. they didnt want to give steroids or IVIG etc.

im losing my mind. i dont know how i can go on like this. i have a family, job, 3 kids... all of which are being affected by the fact i cant get this out of my head. i have good and bad days. anyone go through this before? will it get better with time like they say? i feel like my body is alien to me.
Hi Mickey,

I realize its been a long time since this post, but I'm in the same exact position that you were in. I have been diagnosed with acute small fiber neuropathy. My neurologist says that it will likely resolve over time and he put me on gabepentin. Like you, i'm in my early 40s with kids and a career. It has been 4 months now and I am looking to hear from someone who had a successful recovery. Can you share with me how you made out?
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