I don't mean to turn this into a discussion about cortisol panel, but I don't know anything about it. I don't think I've had one and am thinking perhaps I should get one. Why would one get one? I have experienced plenty of fatigue, but that has almost entirely disappeared with vitamin D intake. Then again, not entirely.

David, Cortisol levels can be measured via blood, urinary or saliva tests. Here is something basic on both Cortisol blood tests and urine test. I could not find anything on PubMed for saliva testing. https://www.nlm.nih.gov/medlineplus/...cle/003703.htm

Heavy metals seem to be a problem for Lyme patients. I was also tested and my lead levels were extremely high. I grew up in Flint Michigan. I don't know if the water had anything to do with my lead levels. I also tested the old dishes I had inherited from my mother in law and they contained lead. I was using these dishes on a daily basis and using them to microwave food. Lyme disease changes so much about the body and I think we have trouble detoxing heavy metals.

I was unable to do the EDTA chelation because I am allergic to ethylenediamine, which is what is in EDTA. My integrative doctor has me on Pectasol-C, modified citrus pectin. It will take quite a while to chelate the lead this way, but it is supposed to be gentler on the body than other methods.

Lead can cause neuropathy so it is good to get rid of it.

I've talked about this a lot on NT, the fluoride that is added to MOST U.S. city waters contains lead, much of it is a waste by-product from the lead, aluminum and fertilizer industries. This fluoride is NOT naturally occurring but from waste which "they" are converting into what is going in much of our waters. Don't drink or cook with tap waters. I do my best not to, our city fluoridated in 2009, actually "late" in this 6 decade practice.

Madisongrrl, I was pondering your elevated Cs+ level - do you use caesium salts often in your work?

This is just a thought but it would surprise me if a chelator (EDTA or equivalent) would help much in getting rid of a monovalent cation like Cs+.

I've had 2 panels - one mid 2014 that I ordered myself when I was in the acute phase of my sickness. That one was okay and I did have a doctor who is familiar with it. Then I just tested again in December. It was just saliva panel. I don't know how accurate it is. I guess I would consider a "rough and dirty" test. Apparently I flunked.

I've never worked with cesium in the lab at all and I've haven't worked in the lab since winter of 2013. I'm pretty much a computer worker now.

I'm not sure if EDTA will work, but I will have a full testing at the end of this process....so we will see what happens.

I got more lab results back today. My CBC was perfect. Yes! At least I passed something. My copper was fine, but my zinc is low so I will be supplementing.

My vitamin D was also low which is insane to me. I had a low vitamin D back at the beginning of 2014 - it was 28. And I have been supplementing between 2000 and 4000IU each day since then. My current vitamin D test was 35. I think they would like to see it around 60 so I'll be supplementing even more now.

One more thing
 

My favorite nurse who understands SFN was not at my appointment on Monday. But she got a message to me today to check out this website to see what type of toxic stuff may be in my zip code.

http://scorecard.goodguide.com/

This nurse is a super interesting person. She has a kid who has recovered from autism. I think in her prior job she worked in a research setting with autistic children and she does lectures on it.

Here is one that I found on you tube, if you are interested in this topic.

https://www.youtube.com/watch?v=z-JIlFPcr6E

Mine was just a saliva panel too. I'm not sure about accuracy either. Maybe we can compare results on PM anyway?