Hi All,
Has anyone had severe hip/joint pain after the IVIG infusion? I started getting the pain in my hip late last night and today it's very painful. I read thru the info the infusion center gave me and hip pain was first on the list of side effects. I called my dr. and he said to start taking an anti inflammatory and hopefully that'll help. If it continues to happen then I have to have less of the dosage of the infusion. So I started taking an anti inflammatory I use for the arthritis in my knee when it flares up......so hopefully this rotten pain will go away soon. Roxie

Roxie,
Could it be possible that you were maybe in one position too long yesterday?

Billye

I did what Billye said and my neck is hurting. Just in case go away ROTTON
pain,you leave Roxie alone, now there feel better. All kidding aside i
sure hope you feel better soon. i've been doing the ice on for 20 mins.
then heat. I sure miss my son the massage ther. Gook luck honey and
feel better.. Sue

It is pretty hard to correlate the pain to the infusion, but consider this...you had to sit for over 4 hours. You may have felt comfortable at the time, but it might have caused you a bit of discomfort today...just like riding in a car for a while, you know?

The other option is it might be IVIG working in an inflammed area.

The only thing I ever felt after IVIG was better vision and less dizzy. I would love to have another course of it now, as my pain level is much higher now and very much more specific, so it would be great to see if it worked...I don't think I am likely to get them to do that 'experiment' with me right now.

We will see what the re-examination of my labial gland biopsy yields as well as a few other biopsies I am having done.

Hope you feel better soon.

HI Sue and Billye and Cyclelops,
My Rheumatologist seemed to think the pain is from the IVIG, and the first thing listed on the side effects sheet is hip pain/joint pain......but it could be front sitting too long also. I just know it hurts and I'm ready to be done with it!!!
Hopefully Sue's shooing it away will help Thank Sue!
Sue are you under water there? We have LOTS Of water in our yard. We just had to lower the garage door so water wouldn't come in that way cause it was pretty high in the drive. The rain stopped about an hr ago so hopefully the water will resede soon. My husband is on the other side of Houston at work......and has to head home in 5 min......I sure hope he doesn't get in the flood water!! Roxie

things! I only realized this when at the hospital infusion center, mainly because it'd take 1-3 hours from arrival, setting up the IV line, getting blood drawn, and after hour 1-3, starting the infusion... It could be up to 7-8 hours of sitting! Think about it, no matter how much I hurt, I realized that I must be getting up, going to the kitchen for something, doing dishes, going to the bath for stuff.. I'd be getting up/down at least 3-10 times an hour..Sitting STILL for a whole day, well I never was that still at any office job! IF you can, see if you can unplug that pump on the pole [it should have a battery charge] and take a short walk up and down the hall or around as best you can to keep things circulating - if you aren't flat out asleep, that is. It really helps and also keeps your feet from swelling.
Hang in there, truly - Stay dry in the meantime! - j

HI J!
Yes it was the pits having to sit that long. I arrived at 9:45......by the time we got the paperwork done and got the IV in it was 10:45 and then I was there till 3:40 by the time they did the flush on the IV. It was such a long day! I wish the Benedryl would make me sleepy, but it didn't, at all. I only got up a cpl times to use the ladies room.....next time I'll walk more! I'm taking my headphones and a good book to read......I only took magazines before. Hope you have a good evening! Roxie

I hope your pain goes away soon, after just having a hip replacement not to long ago, i found that beforehand, that sitting for to long in one spot use to aggravate to hell out of my hip, walking around a bit does help a lot.

Hi Roxie:

Just wanted to say hi, and send a hug. You're doing great.

Melody

I'm sorry your in pain. I agree hold to hope that this in the long run will help. Can you take a bath? Or a heating pad or maybe cold? I have no idea but for my leg/foot pain I go back and forth. Cold water soak then warm. It sometimes help. Take care