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Old 02-22-2016, 03:10 PM #1
Healthgirl Healthgirl is offline
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Join Date: Dec 2014
Posts: 791
8 yr Member
Healthgirl Healthgirl is offline
Member
 
Join Date: Dec 2014
Posts: 791
8 yr Member
Default Difficult decision to make for treatment

As some of you know I have been going to a functional md who is treating me for mycotoxins with cholestyramine. I am taking an extremely low dose. I'm not having any bad effects, but don't seem to be having any good ones either.

This morning I went to a gastroenterologist and presented my neuropathy case, copper deficiency, anemia, and malabsorption.
I showed him the photos of my vascular rash, and the ones of my daughters that we started getting in the sun last year. Also about the kids on and off diarrhea. He agrees that it is pretty clear that some type of exposure has cause this (as does my local neurologist, and functional md).
He said there are some strange things that can happen from mold and not to rule that out.
I showed him the 2 case reports of the peripheral neuropathy caused by Giardia and he thinks I should stop the cholestyramine and do 10 days of Flagyl.
I am terrified of taking this, but he said if we do have a parasite, it will not go away with out treatment and that people can have Giardia for years.
He also was curious about lyme and other tick born stuff that could have gotten us. I told him I did 3 weeks of doxycycline in the beginning when they thought it was lyme and that it had no effect. At this point I don't know what is left besides troubleshooting with drugs. I don't want to live life this way unless I have to.
Any and all advice or information is welcome.
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