NeuroTalk Support Groups - Is this Peripheral Neuropathy?

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Worried about the future....

Quote:

Originally Posted by Rancar (Post 1201613)

They don't have an exact diagnosis in the sense of a name to my disease, but now I know it is an auto-immune deficiency that causes my body to get confused and attack nerve endings, likely as a result of getting vaccinations last year. Putting an exact name to it isn't going to change the treatment options in any meaningful way.

Believe me, I too have many sleepless nights worrying about the progression of my condition.

The sleepless nights and constant worrying don't help me at all, and I doubt they are helping you either. By getting the tests and seeing qualified professionals you are doing the right thing. Worrying about it now isn't going to change a thing and it could hurt by slowing down your bodies ability to heal.

Rancar I feel the same exact way. I too have many sleepless nights worrying about the progression and what I'm going to be like in 6 mos/ a year from now. I have been trying so hard to find a "cause" too. The Neurologist just recently after 4 years says mine is auto-immune related. What is the point in "our" knowing what is causing this awful thing. I mean, is this real...Do we really have a progressive disease that will just continue to get worse.(?) I'm sorry , I just cant wrap my head around this. There is NO rhyme or reason for this pain! I am otherwise very healthy with strength, stamina and no muscle weakness ... I just don't get it.. Sorry for the rant!!!!

Quote:

Originally Posted by Noey (Post 1201389)

Hey everyone, I'm here to just ask if you guys think I have MS. I'm a 23 year old female. My journey starts on January this year. On the first week, I was sick with a cold, the week after I was got extremely stressed. I noticed I didn't have the appetite but still ate the same amount of food. The next week, I noticed that I was loosing weight. This concerned me as I'm not the type to loose weight right away. I got a whole abdomen ultrasound, all results came out fine. I got tested for my thyroid levels, they came out fine as well. I could say that since the check up I haven't been loosing weight anymore, I've been gaining but very little. My stool has been very weird too. At the time of my check up, January 26, I noticed some muscle twitching. They started on my legs. As of writing, the twitching has progressed everywhere. It does not happen all day, around 10 times in an hour. I've also experienced some muscle weakness and loss of muscle tone. Just this morning, I was standing in line and my knees started to shake like crazy. I couldn't make it stop. There are moments also that the right side of my brain tingles. There are times as well that there is muscle pain on my right arm and right leg (not at the same time) sometimes, my left leg feels really numb. I'm so lost on what this could probably be. I know Peripheral Neuropathy is usually caused by an underlying problem but I don't think I have that. Could I possibly have this?

its too early to tell for MS, as MS you need other findings to be positive. Hopefully a neurologist can clear things up for you.

Get your B6 levels checked, it is a largely unrecognised but probably quite common cause of neuropathy. It appears even neurologists don't know much about it.

You don't have to be taking vitamin pills to have problems, some people have an enzymopathy that cuases high levels.

B6 is added to many vitamins in large doses, eg Blackmores Magnesium Pills have 50 units of B6, that is a megadose in itself, and if you add a Swisse Zinc Pill another 25 units, a Blackmores Mega B etc adds more, and you are then in the danger zone.

I am speaking from painful experience.