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-   -   Toxic nerve damage (https://www.neurotalk.org/peripheral-neuropathy/233137-toxic-nerve-damage.html)

LisaAnnB 04-06-2016 01:39 PM

Quote:

Originally Posted by Rancar (Post 1207129)
Is the B6 Plasma test the right one to take? Mine shows me right in the middle:

Component
VITAMIN B6,PLASMA

Your Value
19.9 ug/L

Standard Range
5.3 - 46.7 ug/L

Yeah, that is normal, but b6 levels go back to normal about 2 weeks after you stopped taking the vitamin or supplement, so it can seem normal even if b6 was the cause. The bigger question is if you were taking b6 when it happened or right before, that's if you were ever supplementing with it.

Itneverends 04-13-2016 07:14 PM

synthetic b6 and the lack of information to the public
 
Happened to me too. My doctor put me on it yrs ago...25-50mg in a b complex. Many docs since...no one stopped it. Now burning everywhere. Healing will take time. EMG normal, no small fiber neuropathy, no autoimmune damage. Did hurt some teeth being severely dehydrated. Hope you heal.

Itneverends 04-25-2016 12:39 PM

sfn
 
I was negative for sfn. My B6 levels were 74. I'm recovering. Shocking and disturbing....all of this!!!! Such betrayal by science. I was taking 25-50 mg....per a doctor.....well below USA upper standards but well above Europe. Time for some studies!!

Summerfun 04-27-2016 07:26 PM

B6 and lack of education
 
Happened to me too but I had already been diagnosed with idiopathic NLD SFN. Ten months after I was diagnosed I sought out a LLMD because I learned Lyme could cause it. My 2nd Elisa came back negative but my Western Blot IgM was positive. My LLMD started me on B6 + B Complex as well as antibiotics. Who puts a person on B6 who already has neuropathy without testing their level first? I was on 250mg daily for one year when I learned it could cause SFN and asked to have my level tested. She thought it was really unnecessary as it is a water soluble vitamin and "doesn't build up in your system". Wrong....my level came back as 53 with normal at 21 for the max. So if the Lyme did cause my SFN any chance of regeneration after antibiotics was eradicated by the toxic B6. More education is needed!:(. I see my neurologist next Tuesday and he is going to be mad!

Marie33 05-04-2016 06:03 PM

Quote:

Originally Posted by Rancar (Post 1207129)
Is the B6 Plasma test the right one to take? Mine shows me right in the middle:

Component
VITAMIN B6,PLASMA

Your Value
19.9 ug/L

Standard Range
5.3 - 46.7 ug/L

Hi I suffer with small fiber sensory neuropathy. I eat alot of avocados to stay healthy. My last B6 level was 17. Now I am concerned because I didn't know avocado is "Very high in B6". Should I cut back or cut them out of my diet?
The Standard range is 5.3-46.7. Two years ago my B6 was 43 and my neurologist said it was to high. Is the standard range you mention accurate?
Any suggestions would be greatly appreciated.

Summerfun 05-04-2016 09:25 PM

Quote:

Originally Posted by Marie33 (Post 1210291)
Hi I suffer with small fiber sensory neuropathy. I eat alot of avocados to stay healthy. My last B6 level was 17. Now I am concerned because I didn't know avocado is "Very high in B6". Should I cut back or cut them out of my diet?
The Standard range is 5.3-46.7. Two years ago my B6 was 43 and my neurologist said it was to high. Is the standard range you mention accurate?
Any suggestions would be greatly appreciated.

My labs were done at Quest and their range for normal B6 is 2.1-21.7. I hope that helps.

Summerfun 05-05-2016 07:08 AM

b6
 
Quote:

Originally Posted by Summerfun (Post 1210319)
My labs were done at Quest and their range for normal B6 is 2.1-21.7. I hope that helps.

Just had my B6 rechecked at MGH and their range is 5-50 so it really depends on the lab. :confused:

stillHoping 05-05-2016 07:13 AM

Quote:

Originally Posted by Summerfun (Post 1210346)
Just had my B6 rechecked at MGH and their range is 5-50 so it really depends on the lab. :confused:

Are they using the same measuring units ?

mrsD 05-05-2016 07:33 AM

labs vary in their ranges. It has to do with which machines they use, and how they calibrate them.

more here:
http://articles.chicagotribune.com/2...-range-glucose


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