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Old 03-04-2016, 04:39 AM #11
Neuroproblem Neuroproblem is offline
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Originally Posted by carrieLharris View Post
Thanks for your reply.
I'm still in the process of dx. I know I have sensorimotor polyneuropathy. How is autonomic determined?
autonomic, as it implies, functions that is not voluntarily controlled: bowel movements, sweating, crying, nasal secretions, mouth dryness, bladder function, balance and possible eye distortions.
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Old 03-04-2016, 09:11 AM #12
Ragtop262 Ragtop262 is offline
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Originally Posted by carrieLharris View Post
Can side effects happen at any time or most likely soon after starting med? I've been on it awhile but have increased amount a few months ago. Prior to this I hadn't noticed any negative effects but haven't been that impressed with it either. It seems to work well for awhile and then an increase is needed again.
Thanks!
Just like the desired effects of a medicine can happen immediately, or over the long term - so can the side effects develop immediately, over the long term - (or after a dosage change, etc.)

I will warn you that if you decide to go off the Gabapentin, do so very slowly. Again, everyone reacts differently - but I have some experience with coming off Gabapentin, and it was not fun for me. (Even tapering off slowly - that final step down to zero was a bear.)
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"Thanks for this!" says:
Patrick Winter (03-04-2016)
Old 03-04-2016, 10:56 AM #13
Patrick Winter Patrick Winter is offline
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Originally Posted by SylvieM View Post
Thank you Patrick for this much more detailed reply....I'm blown away by the insight and knowledge of so many people (like you!) participating on this forum. Such a boon to a newbie like me. It's just such a drag this disabling and painful disorder has so few treatments that are truly efficacious.....not to mention that many are just dangerous.

I'm taking all the supplements you mentioned. I also think Benfotiamine appears to help mitigate the pain. On the other hand, I also mistrust the unregulated supplement industry...I'm just taking it on faith (so to speak) what is on the label is in the pill!

Sylvie

Sylvie, I personally trust Doctor's Best and Life Extension products the most. They both have similar suppliers on many of their products that can be researched. Only because I have personally seen good results from them. I personally think with some of the supplements in the beginning you need to go with a very high dose to see results. This way you can see an impact. it also takes time for the body to start soaking them in. Then you can taper down. The key thing also is knowing how to take certain supplements. Some supplements must be taken on an empty stomach at least an hour before eating for maximum effect. Some supplements are ingested better with a fatty meal, some supplements in combination with others, etc. it's a continual learning process. I always take R-Lipoic and Benfotiamine at the same time and get real good relief. If I had to give up all my supplements and keep 2 it would be those. Google the clinical trials on a lot of these things. You will find some have multiple examples of efficacy in trial. The studies on Benfotiamine, B12, Acetyl L-Carnitine and R-Lipoic Acid are quite numerous in regards to neuropathy pain relief.

I also marvel at how stress, lack of sleep and eating unclean are immediate triggers for this condition. Anytime i even flirt with cheating and having junk I pay almost instantly. It also reminds me that I was able to bring my pain down and how it could be much worse if I am not vigilant.
__________________
Diagnosis: Idiopathic Small Fiber Neuropathy (Statin Induced)




• R-Lipoic Acid: 100mg - 300mg Daily
• Acetyl-L Carnitine: 1500mg Daily
• Vitamin B12: 1000 mcg Daily
• Magnesium 500mg Daily
• Grape Seed Extract 200mg Daily
• Benfotiamine 300mg daily

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