Quote:
Originally Posted by SylvieM
Hi NG,
Have you heard of or been evaluated for Ehlers-Danlos Syndrome? It is a genetic disorder that can cause peripheral neuropathy and Livedo reticularis. There are different forms of EDS and symptoms can vary widely in type and severity...it can often be very mild and difficult to diagnose. Needs a genetic test.
It is often an underlying cause of POTS and other autonomic disorders. *..lots of posters have it...including a number of mothers whose kids also have it.
I'm on my e-reader, so can't cite sources....but Wikipedia has a good description and just Google "EDS" and "dysautonomia"*
Just a thought.....I hope you are soon able to identify what is going on!
Best,
Sylvie
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No I haven't been checked for it. I've never even heard of it. Thanks. I will definitely ask about this. Is there a special doctor who does genetic testing. My neurologist doesn't seem interested in that... just likes to pin everything on random connective tissue autoimmunity, but with out a cause, there is no treatment.
03-07-2016, 10:31 AM
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