Thats funny. I wanted an appointment there next week but could only get one at the end of April. I see Dr Chin and he's out at a conference next week. I'm at the end of my diagnostic journey. Had the LP last week which was great fun. I think at this point theyre just going to treat me symptomatically ... he thinks it should go away on its own with time. It's amazing the options are so slim. Either do nothing, treat with drugs that just mask the symptoms (poorly) or try steroids which have major side effects and may not work and IVig which seems to just lessen symptoms.

Im sorry about your issues. Imaging of the brachial plexus will probably be low yield. Those MRI's usually are only positive if you have vascular compression or a tumor compressing on the nerves (which u dont have). They usually cant diagnose compression by muscles etc. You mentioned you have some c-spine issues. I'd say get them to write you a script for physical therapy. It's weird you have burning. usually radicular pain is more of a dull pain. how often to you goto cornell for you SFN? once a year at this point? maybe you should get another EMG. I think theyre going to throw me out of their practice (i've been really high maintenance!)

Thanks for the vitamin info. Its hard to tell if anything works or just has a placebo effect. at least they make me feel like im being proactive. Im hoping the warm weather improves things. I seem to be very sensitive to the cold.

Goodluck next friday.

Did our symptoms resolve?
 

Hi Mickey,

I have been reading over the small fiber neuropathy posts, and your posts caught my eye. My symptoms and onset were very similar to yours, except I have constant muscle fasciculations. It has been 5 months now and I was officially diagnosed with small fiber neuropathy 2 months ago after I had the skin biopsy. My question is, did your symptoms resolve over time as your doctor initially predicted? If so, how long did it take?

Hi Glenn: been too long. Don't know any other way to reach you so I thought I'd do it here. Alan is now in a nursing home. Has too many medical issues. I had an accident and a big surgery in December so I'm stuck at home and can't go down my stairs. Can't visit him because most nursing homes are on lockdown. Broke my right femur and had a titanium rod inserted. Have one in the other leg also.
How are you and your family?

Melody

So sorry to hear about all that.
 

I can only hope that the two of you can get through all this--and the Covid 19 situation--intact.

We are ok here--spouse telecommuting, son tele-collegeing, and I tele-complaining; since I am a freelance tutor/test preparation specialist, my assignments have dried up, not only because no one wants in-person sessions currently but also due to the fact that with most exams suspended/postponed for now no one knows what to prepare for.

Private message me if you want . . .

private messaging you