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Old 03-06-2016, 08:24 PM #10
ger715 ger715 is offline
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Join Date: Jul 2011
Location: Illinois
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ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
Default Siylie/LisaPeach/Debi,

Quote:
Originally Posted by SylvieM View Post
Dear LisaPeach,

I also extend my sympathy to you.....

There might be a lot of good information for you on the RSD/CRPS site here....where posters are dealing with severe chronic pain. I'm not sure if you are seeing a specialist in pain management....but it does seem essential you do so now.

Also, what Zygopetalum wrote about a painful reaction to opiods seems to make sense...especially in the context that they are not the best option for neurological pain. Perhaps a PM specialist can help you sort this out and also suggest other treatments to both wean you off and more ably address the pain.

I truly wish you the best in finding help for your situation.

S


I have been under Pain Management for 7or 8 years with the same doctor.

I take Oxycontin ER, as well as Oxycodone for break thru pain daily For the past 4 years, I have been on the same dose. We are all different and what works for one might not work for another. My PM doctor has Never mentioned opioids not working for PN. These meds have made my days at least tolerable.

I am far from pain free; especially with the burning ankles/feet which is usually worsened by being on my feet for long periods. Sitting down with my feet raised on a couple of throw pillows for 15 - 20 min. usually takes the burning level down considerably.

Debi is on a very low dose of Morphine 15mg's, which may not be enough to cover her pain. Unfortunately, her PM doctor does not want to increase her medication to 30 mg's. This of course makes it difficult for her to know whether her pain could be reduced by upping her dose.

For many with PN; the only way to control their pain and lead a more productive life is with medication for pain even if it is opioids .


Gerry
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Lukesmom (03-07-2016)
 

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