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I posted recently on a Lupus forum to ask for advice on treating my very itchy scalp. I am used to itching everywhere after a lifetime of eczema and alopecia. But now I have no scaly skin or dandruff or hairloss (thankfully!) - as with the SFN everywhere else - it's invisible.
Anyway someone replied saying her mother suffers from Notalgia Paraesthetica and this affects her back but also her scalp with bad itching. I read up and realised I've had this for years too - always having to use a hair brush or beg husband to scratch the part of my back I can't reach. So I really think I do have this but am unsure whether it might be part of the small fibre neuropathy or vice versa? I do have arthritis in my neck but the neurologist said that it wouldn't be causing my neuropathy because it's not on my spinal cord (yet). I've had intermittent spells of neck and shoulder pain but not for a year or so now and neck pain isn't uppermost in my list of symptoms at all. But an MRI last year showed that I do have quite a lot of arthritis there so maybe this is how it's showing itself symptomatically?
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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