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03-12-2016, 05:42 PM | #1 | ||
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My legs feel like they have tight bands around them. The muscles feel so strange and sometimes I have trouble getting them work right. This started about 4 months ago in my calves and now it is my whole legs. Anybody else have this? Is this part of small fiber neuropathy?
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03-13-2016, 05:56 AM | #2 | ||
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I am not sure if it is the SFN. I only had this in my feet prior when I worked long hours and it resolved after rest and sleep. I now wake up with it. |
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"Thanks for this!" says: | onebeed (03-13-2016) |
03-13-2016, 07:42 AM | #3 | ||
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03-13-2016, 09:13 PM | #4 | ||
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Yes, the feeling of tight bands around my feet and lower legs is one of the most uncomfortable sensations. Sometimes it is almost unbearable. I have had the symptom for many years. I have hereditary neuropathy, SFN and LFN.
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"Thanks for this!" says: | onebeed (03-15-2016) |
03-14-2016, 12:44 PM | #5 | ||
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Cliffman |
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"Thanks for this!" says: | onebeed (03-15-2016) |
03-14-2016, 02:19 PM | #6 | ||
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How do you live with this pain? I have SFN mostly in my feet (since 2011) and most time it is unbearable even with pain medication. I also take Lyrica 600 mg per day, Benfotiamine and Metanx. For me the pain is actually worse during the day (I work at a desk job) and I wear slippers for most of the day. I want to scream out in pain most times but of course, cannot. I have also had two major back surgeries so I am unable to bend down to rub any type of cream on my feet. I am only 67 years old, the thought of this pain for the rest of my life leaves me wondering.....
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03-14-2016, 05:22 PM | #7 | ||
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I am on MS Contin ( time release morphine ), gabapentin, and Baclofen for muscle spasms. It has been very effective for me, allowing me to be more active at least part of the day. I really believe that there is a medication or combination of medications which would improve quality of life for most of us.the hardest thing is finding a doctor willing to listen and to have the patience for the trial and error necessary to find the best regime. Neurologists do not want to do this in most cases. |
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