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Old 03-15-2016, 07:51 AM #1
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Default steroid inhaler question

This isn't directly about PN, but asthma came along with my autonomic problems at the same time and everyone here is so knowledgeable so I thought I could ask:
I used the steroid inhaler for the first time on Sunday morning and didn't get relief for my breathing. It made me shake like crazy, sweat and feel panicky. The following morning I woke up and my asthma was gone. For the entire day and through the evening my breathing was back to my normal low blood pressure breathing. Now I woke up this morning with the asthma back full swing.

I thought the improvement was due to the rain dampening down the tree pollen, however it is raining again today and I am a mess.
Could that one puff on the inhaler have not kicked in until 12-24 hours later?
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Old 03-15-2016, 08:06 AM #2
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Default

If you are referring to the Ventolin you mentioned in your other thread, it is NOT a steroid inhaler. It is Albuterol and works quickly, not 12-24 hours later. Now if you were also prescribed a steroid based inhaler, like Symbicort, then yes, it can have that type of action to help hours later. Have you been prescribed a new inhaler? If so, what is the name?

Your asthma may have shown up at the same time as your other autonomic symptoms but it would be caused by the underlining disorder, not the autonomic dysfunction/neuropathy. Adult onset asthma is commonly caused by autoimmune conditions or other systemic conditions. Autonomic neuropathy can can breathing problems like central apnea, but it would not 'cause' asthma itself. Sorry to hear you have yet another problem to deal with in your already complex medical history.

As others have already said on your other thread, Ventolin is for acute asthma attacks (right when the attack is happening). A steroid based medication like Symbicort is for long term management of asthma...to be used daily to help prevent asthma attacks. Of course, you would still have your Ventolin to use just in case you have an acute attack, but with Symbicort, it should not be needed as often.
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Old 03-15-2016, 08:41 AM #3
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Quote:
Originally Posted by en bloc View Post
If you are referring to the Ventolin you mentioned in your other thread, it is NOT a steroid inhaler. It is Albuterol and works quickly, not 12-24 hours later. Now if you were also prescribed a steroid based inhaler, like Symbicort, then yes, it can have that type of action to help hours later. Have you been prescribed a new inhaler? If so, what is the name?

Your asthma may have shown up at the same time as your other autonomic symptoms but it would be caused by the underlining disorder, not the autonomic dysfunction/neuropathy. Adult onset asthma is commonly caused by autoimmune conditions or other systemic conditions. Autonomic neuropathy can can breathing problems like central apnea, but it would not 'cause' asthma itself. Sorry to hear you have yet another problem to deal with in your already complex medical history.

As others have already said on your other thread, Ventolin is for acute asthma attacks (right when the attack is happening). A steroid based medication like Symbicort is for long term management of asthma...to be used daily to help prevent asthma attacks. Of course, you would still have your Ventolin to use just in case you have an acute attack, but with Symbicort, it should not be needed as often.
Thanks enbloc!
I was referring to the symbicort. The ventolin didn't give me bad effects. It would allow things to open up so I could cough up a little mucous, so I guess it was relaxing the airways a bit, but it was not cutting it so I went to my PA and she gave the symbicort. I tried it and was shaking like crazy and it didn't help... or maybe it did. I'm wondering if it was worth the bad 2 hours of that feeling to give such improvement the next day.

Yes, I understand that whatever is systemically wrong with me is causing all of my problems. I just wonder if the nerve damage is what causes my circulation to be so bad and there for is damaging my organs or causing them not to be able to function properly. My circulation is really terrible.
I guess that in itself wouldn't cause such a reaction and dramatic allergies though.
It just kills me not to be able to figure this out and that I can't find a doctor who is at least intrigued enough to want to dig deep, especially when the children are affected.
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Old 03-15-2016, 09:50 AM #4
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Default I took Pulmicort

which is only an inhaled corticosteroid. It did make me shaky a few times but seemed to help at 1st. After a short time it did nothing. I eventually weaned off it.
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