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Old 04-05-2016, 06:29 AM #1
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Zatochi Zatochi is offline
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Join Date: Nov 2011
Location: Louisiana
Posts: 57
10 yr Member
Zatochi Zatochi is offline
Junior Member
Zatochi's Avatar
 
Join Date: Nov 2011
Location: Louisiana
Posts: 57
10 yr Member
Default OMG! I can't believe it

Hello all..

I have Peripheral Neuropathy (affects both feet and both legs) and Radial Neuropathy (right arm and right hand). That should be enough for a person to deal with. I suffered from Trigeminal Neuralgia prior to having surgery for it about 5.5 years ago. I have had no symptoms since then and the surgery literally gave me my life back. On Monday of last week, at 2:35am I had a very bad attack of Trigeminal Neuralgia. My first attack since surgery and I was crushed. I just can't believe I have to go through this again. Now I am having attacks on a daily/nightly basis. Severe and extremely painful attacks. None of the major medications for this have helped me in the past. I can't believe that more research has not been done on this. I would assume because it's kinda rare. Lucky me. Through my experiences last time, I found that most doctors have heard of it (most of them anyway) but know nothing about it. I have actually had ER doctors ask me what it was. Not very encouraging and really frustrating. What the hell is going on with my nervous system?

For those that aren't familiar with Trigeminal Neuralgia - https://en.wikipedia.org/wiki/Trigeminal_neuralgia

Sorry...I'm not looking for any sympathy...I'm just venting.
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