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04-11-2016, 09:48 PM | #1 | ||
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DHCkris - I will definitely let you know if I ever find a cause. I definitely had the same mind set as you - I am TOO young to have idiopathic neuropathy! Somtimes I still don't believe it. Please do the same and let me know how you are doing! My first skin biopsy was kind of a mix of normal and abnormal so I am considering a second to see how it compares (you have prob seen past posts about how 2 biopsies in so much better info wise than 1 - it is still not my favorite test though as I hate needles). I definitely get the alone thing - you don't happen to be located in texas do you? Then we wouldn't be so alone after all. The running probably helps because as my doc says "the normal sensations over power the abnormal ones".
If you don't mind me asking - where do you experience your pain and what kind of pain/how painful is it? I only ask because I am looking for similarities between us as it seems to be rare in young people. Caroline2 - It along with tennis are my two favorites.I know it is demanding on the body but for me it is my time to mentally relax and let go. It is very good for stress and I think that when it doesn't cause my feet to burn it actually does help with the clothing sensitivity for me (although this probably has more to do with running's stress relieving properties) teachermom - I remember your first post because I was excited to see someone else asking questions about running! I do often feel better overall when I have been running as I said to Caroline I think for me it is because it helps with any stress from that day. Yes for me this way never a problem until my feet started to bother me. And I think that I have a large variety of symptoms but for the most part my level of pain experienced is much lower than many on this site - the fact that I can still run is probably a testament to that. Do you have any foot pain at all? Or it it all upper leg? onebeed - Haha like I said I will try to maintain it as long as possible. Unfortunately (before I had ever had ANY problems with running) - I signed up for a marathon (my first) and I am so excited...now I a hoping this doesn't get worse before then |
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04-11-2016, 11:01 PM | #2 | ||
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Boiler1993, I'm in New York, not Texas, unfortunately. What's good though is I recently learned that Weill Cornell Medicine in NYC has a whole Neuropathy Center with some of the best doctors for diagnosing and treating neuropathy. I made an appointment for June.
I'm still not convinced that what I have is neuropathy though because I really don't have pain at all. I have body-wide tingling and fasiculations (twitching). My eyes, groin, chest, ribcage, buttocks, thumb, toes, ankles all twitch. The tips of my big toes are numb (I've lost about 90% of feeling) and I get little tingling and "shock" feelings through my toes, heels, ankles and left knee and thigh. It's like a tingle that jumps around these areas. Honestly I probably wouldn't notice it or think it was abnormal if it weren't for the toe numbness, so I would say that's my main symptom. The tingling can get pretty intense, but it's never PAINFUL. My feet get sore easily around the numb parts, but it's like a normal "sore foot" feeling, not like a burning sensation, though I do get very slight burning/cold feelings in my feet and legs sometimes too. I have quite severe scoliosis but my doctors feel confident there is no nerve impingement or CNS issue that's causing this, or anything related to my spine. Still though, I can't help but wonder if scoliosis is the culprit in an indirect way - like it definitely messes with the alignment of my legs, since my hips are slightly askew, and it alters my balance and my gait. I wonder if many years of walking "funny" with a crooked back has caused nerves in my feet and legs to get compressed. My doctors think it's plausible but they told me I should see a neuro who specializes in neuropathy to do a biopsy, so that's my next step. I know I should consider myself lucky to not have pain, but I want to avoid this progressing if it truly is SFN. I'm terrified of that happening because I'm so young and because my life is really great otherwise right now. New job, new living situation. Plus, I have a lot of health anxiety and tend to obsess over these things, which isn't good. As soon as I noticed my toes were numb it triggered health anxiety that has yet to go away. Really, I would say the anxiety is my worst symptom, but I'm getting that under control too, thankfully. I just want to feel like a normal person again! I'm sure you feel the same. |
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04-13-2016, 09:37 AM | #3 | ||
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04-12-2016, 05:37 PM | #4 | ||
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"Thanks for this!" says: | Cliffman (04-12-2016) |
04-13-2016, 09:41 AM | #5 | ||
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04-13-2016, 03:46 PM | #6 | ||
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"Thanks for this!" says: | boiler1993 (04-14-2016) |
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