I'm really sorry to hear your kids are affected by this. I just wanted to mention that I remember reading a case where a whole family was afflicted with strange neuro symptoms including the children. It was a case of ciguatera poisoning from seafood here in Australia. Just thought I would mention it too you.

I do often wonder about something like that. I have asked many doctors if they think this could be linked to all the camping and lake swimming we do. They just shrug.