NeuroTalk Support Groups - Repeat Skin Biopsy

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- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Repeat Skin Biopsy (https://www.neurotalk.org/peripheral-neuropathy/235295-repeat-skin-biopsy.html)

Mine started......

with pins and needles in my fingers, then toes that lasted about 6 weeks and stopped. Then 3 months later my body exploded with weird sensations everywhere. Face, tongue, thighs, truck, arms, etc. very scary! The whole thing started the afternoon on the day after receiving the Hep A shot in preparation for travel. I did not have a virus. I later tested positive for Lyme (not per CDC but per Igenex). So I suspect it was either vaccinations as I also received the Shingles vaccine and the flu shot all within 9 months OR Lyme but I will probably never know. I do not as of yet have autonomic issues at least that I know of. I hope that helps. Feel free to ask additional questions. Hang in there!

Clarification.....

Quote:

Originally Posted by Healthgirl (Post 1209656)

Would you mind if I ask questions? I was diagnosed at the end of 2014 after experiencing mostly autonomic symptoms that began to turn into nerve pain, numbness, tingling, etc. I wound up so bad I could barely function for 6 months. I have recovered somewhat.
Do you remember having the virus?
How did your neuropathy start- what symptoms, how did it progress?
What are your symptoms now?

I did not have a virus but I did test positive for Lyme. I know I was bitten by a tick in Nov 2011 but my primary care physician did not treat it. That was a long time before SFN symptoms in March 2014 but I read it can be latent until a trigger sets it off. My symptoms are tingling, burning (especially thighs), deep ache in big toes, ear flutter, razor like cuts along side of calf, lots of weird things. My symptoms have remained the same but I OD'd on B6 from my LLMD so maybe I would have improved if not for that. I take 2700mg gabapentin daily and keeps the pain around 3 PN a 1-10 scale. Hoping for improvement someday! Best to you!

Quote:

Originally Posted by Summerfun (Post 1209664)

I took my multivitamin randomly and still wound up with elevated B6 as well and wonder if that contributed as well.
Seems like you also have many clues and possible causes.
Are you able to exercise? I miss that the most. Because of the autonomic stuff, it is not possible for me.

Quote:

Originally Posted by Healthgirl (Post 1209665)

Yes I can exercise and I do as much as possible every day. I am scared that one day I won't be able to so I try to enjoy it now. My heart goes out to you because I know how devastated I would be not being able to exercise. I guess the most important thing is to try and find something you like to do whether it is reading, sewing, listening to music whatever. Change is always difficult and we must continue to live life in the happiest way we can. Hang in there....there is light at the end of the tunnel!:)