Hey, just wanted to post up quickly to say how im getting on.

My symptoms before starting supplements were:

• Medium level allodynia in the fingertips.
• Medium level nerve pain in hands with use.
• A mild ache and twitching happening on the R pinky finger
• Medium level paresthesia on the top of my left foot with some prickling underneath when walking.

I have been taking the following supplements for three weeks so far:

• Benfothiamine 250 mg
• Methylcobalmin 5000 mg
• Methlyfolate 400 mcg

and as of today I have also started taking:

• D3 250 mg
• Zinc 375 mg
• Potassium 300 mg

How does that regime sound?

Unfortunately I haven't seen no improvements so far, but its very much still early days so obviously not expecting too much.

Thanks

hey, ive started to get some muscle tremors/ twitching and im suspecting its due the supplements rather than the neuropathy as the twitching is in my knee and down the back of my thigh, far from my hands and feet where the other sypmtoms reside.

Is it possible that the supplements i have been taking could be causing this reaction? It doesnt seem to fit the 'usual' small fibre model i have read about...

Alongside this, i actually havent noticed much improvement at all since i started taking the supplements, is it still considered early days if i have been taking them for 1 1/2 months already?

thanks

If you consume meat and fish, I'd drop the zinc. Are you sure you are taking 375mg of that a day? Zinc toxicity will cause nerve damage over time.
Here is a monograph on zinc:
Zinc | Linus Pauling Institute | Oregon State University
notice that the RDA is 11 mg.

High zinc may throw a person a copper deficiency. I'd get a blood test for zinc, copper and the zinc/copper ratio.

What does your D3 dose mean? D3 is typically listed in IUs and not milligrams.

Sorry, i realise that i'd made a few mistakes there, (i live in finland and reading the labels here is somewhat tricky to a non-native finnish speaker :D )

Here is the corrected regime:

Daily:
B12 5000mcg
B9 800mcg
B1 500mg
Mg 600mg

These 3 i take only every few days:
D3 25 ig
Zn 15mg
K 300mg

I was expecting to see some results by now from the daily regime but nothing yet. Does supplementing usually help in the average idiopathic case? Or is it only more helpful in finding the underlying cause, eg Methylfolate and MTHFR deficiences or Bentofiamine and alcohol related issues?

If you tested positive for lyme disease, you probably should take the antibiotics. The longer the disease progresses, the more complex the symptoms and the harder it is to get rid of. You also should see a lyme specialist.

Small fibre neuropathy
 

Hi did you sort your small fibre neuropathy out I’m in the same position as you was hands and feet now full body not drunk for 2 years