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Old 07-14-2016, 12:58 PM #1
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Default Asthma/bad dysautonomia flare

As far as the extra dizziness, over working heart, and hard to breath issues, the salt is not helping. I happened to be watching the news for my area and it said that the mold count is at a max high!! I am very allergic to mold, but wasn't having rhinitis, so allergies didn't occur to me. NO wonder I can't go outside.
At least I understand why I'm taking a turn for the worse right now.

I just went onto the asthma and allergy website and it says that allergies can cause blood pressure to lower.... well I didn't know that, and it explains what is going on. I can't afford to have my blood pressure any lower or I'll pass out.
What should I do? Antihistamine, albuterol, or steroid inhaler? All this garbage is new to me.
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Old 07-14-2016, 08:58 PM #2
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Get to your doctor and ask for medications to properly treat your low BP!! If you have documented orthostatic hypotension and marked low BP, then you should be treated with medication to help you if your symptoms are as severe as you report.
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Old 07-15-2016, 09:19 AM #3
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Quote:
Originally Posted by en bloc View Post
Get to your doctor and ask for medications to properly treat your low BP!! If you have documented orthostatic hypotension and marked low BP, then you should be treated with medication to help you if your symptoms are as severe as you report.
I'm coming to terms with that. I went yesterday to my cardiologist and discussed options. He said we can try to up my salt to 6 grams and to call him with in a few days to if I'd like to try the meds. I'm preparing myself with knowledge. I'm a little worried about taking florinef. Since I feel that I could be compromised by a pathogen being that several of us are effected with this at the same time, I am worried about putting a steroid in my body.
He mentioned midrodrine, but I think he uses just the florinef, and adds the midrodrine if necessary. Anything you can share about this topic is very welcome!
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Old 07-15-2016, 12:37 PM #4
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I think that Florinef might help you to feel a lot better.
Florinef is very different than Prednisone, it is a different type of steroid (mainly mineralocorticoid), it doesn’t have all the horrible side effects of prednisone and usually it isn’t immunosuppressive.
The dosage for POTS/NMH is very low 0.1-0.2mg.
From my experience the effect of increasing the fluids and salt intake is very limited without the Florinef. Florinef increases the fluids retention and does the difference.
It might take time to adjust the dosage, sometimes it is necessary to add other medications as midodrine, beta blockers, etc..
It took me about 2 months to find the right combination. During that period I had to monitor closely my HR & BP and try miniature changes of the meds.
It is important to monitor the potassium levels, because Florinef might affect it.
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Old 07-16-2016, 02:33 PM #5
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The Florinef (as Still Hoping said) is very different than prednisone. Florinef will help you retain fluids better.

The Midodrine is a vaso-constrictor and works by compressing the blood vessels to keep the blood from pooling in your feet/legs. It works very quickly (within 15-20 minutes) but is short lasting (about 3-4 hours, then starts to wear off), so has to be taken 3 times a day (only during daytime hours). I take it at 6 am, noon and 5 PM. Nothing at night, as you don't want it to increase BP while you are laying down...and possibly cause hypertension at night.

Typically you start with one medication, then add the other if you still need help in reducing symptoms. You are obviously way beyond sodium helping you, and need other intervention. So talk to your doctor about which one to start and go for it. Your symptoms of lightheadedness/dizziness, etc are from not getting enough blood to your brain. This is not good to deprive your brain of necessary oxygen rich blood.
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Old 07-17-2016, 09:35 AM #6
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enbloc and stillhoping, I really appreciate the information.

I am trying to figure out what to do first.

Since I am sure that my autonomic problems are being flared by the mold spores in my area, I'm wondering if I should try singulair first. I've done some reading on allergy websites and allergens can cause a drop in blood pressure and dizziness. What do you think?

Also, I went to the cardiologist and he said I should try 6 grams of salt, which I was way under, so I'm not sure if I've given that a fair trial yet.

What do you all think?
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