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Old 07-18-2016, 07:40 PM #1
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Originally Posted by janieg View Post
Hi Slay,

I don't know if this is good or bad news for you, but none of the symptoms you mention are unfamiliar to me. I have near-constant fasciculations in my legs, and the rest of my body is not immune to them, especially my back muscles.

Beyond that, I have widespread, "inappropriate" sensations that I describe as water dripping on me, feathers being dragged over my skin, socks being bunched up between my toes, stinging, zapping, burning, rushes, tightening in my temples, and the list goes on... And yes, my heart rate increases as well.

I strongly recommend you get some of this stuff to see if helps with the twitches. It definitely dialed mine back a good notch, but wasn't a complete cure. Still, it was a noticeable help and worth it. This is the generic version of a supplement called Slow-Mag.

I know you probably feel crazy with all the symptoms you're having, but trust me, you're completely normal here.

Hi janieg, thanks for that!

Out of curiosity what's your serum magnesium level showing? I've been at a steady 2.20 on a normal range of 1.5 - 2.5.

I have some "Natural Calm" magnesium citrate powder that is gluten-free / vegan / non-GMO. Haven't been taking it religiously because I'm not showing all that low in serum, and because I didn't wanna be high in magnesium since that can actually cause twitching.

It doesn't look like the one you posted is gluten free which may be a problem for me, so I wonder how different they are in function.

Please let me know how long it took before you noticed a relief in symptoms, and thank you again!
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Old 07-19-2016, 09:46 PM #2
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I've not had my serum magnesium tested. I checked all tests run, and that was never one of them. No doc has ever batted an eye at my supplementation, but at my annual physical next month, I was going to ask for a full battery of electrolyte testing run. It looks like most are covered in the annual bloodwork done, but magnesium isn't.

I noticed an improvement pretty quickly. The twitching in my legs was unbelievable when this first hit, especially after exercise, so the improvement was noticeable. Like I said before, I still have that symptom, but it's greatly reduced.

I'm in the middle of a multi-week flare like I haven't had in a long time, and I just broke down and ordered a TENS device. I'll be reporting back on how/if it works.

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Originally Posted by slay2k View Post
Hi janieg, thanks for that!

Out of curiosity what's your serum magnesium level showing? I've been at a steady 2.20 on a normal range of 1.5 - 2.5.

Please let me know how long it took before you noticed a relief in symptoms, and thank you again!
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Old 07-19-2016, 09:55 PM #3
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Originally Posted by janieg View Post
I've not had my serum magnesium tested. I checked all tests run, and that was never one of them. No doc has ever batted an eye at my supplementation, but at my annual physical next month, I was going to ask for a full battery of electrolyte testing run. It looks like most are covered in the annual bloodwork done, but magnesium isn't.

I noticed an improvement pretty quickly. The twitching in my legs was unbelievable when this first hit, especially after exercise, so the improvement was noticeable. Like I said before, I still have that symptom, but it's greatly reduced.

I'm in the middle of a multi-week flare like I haven't had in a long time, and I just broke down and ordered a TENS device. I'll be reporting back on how/if it works.
Please do. Hope you feel better.
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Old 07-20-2016, 08:07 AM #4
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For those who think magnesium "isn't working" when orally taken, you might consider topical forms.

Areas under stress may have poor blood flow (constricted vessels) so the magnesium may not get into the tissues well.

Kirkman magnesium cream applied to the specific areas of the muscle twitching, may work better. Don't apply this all over the body in one application. Instead focus on an area only and rotate to another area the next day. Stress and inflammation do affect blood flow...and topically magnesium may get in better than oral.

A good test of this is a lukewarm tub of water, with epsom salts added. This usually relaxes stress and helps the body return to a more normal state.
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"Thanks for this!" says:
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Old 08-22-2016, 07:32 PM #5
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This has been a fascinating series of posts. I have had the fasiculations mostly in my legs for 14 years. It started about the time I started developing the strange symptoms in my feet finally diagnosed as axonal loss polyneuropathy just last week after an EMG. My neurologist essentially blew off my years of fasiculations as "inherited, certainly not ALS." I knew they were not ALS, having had them for 14 years. Come on. I find the fasiculations "go nuts" after certain sorts of exercise and other times, like right now, just sit there and flutter at a low level. I am rarely without them, but I have never had them with "electric shocks" as mentioned in the initial post. I will leave that to my largely dead feet and ankles with the random electric shocks and zaps.
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Old 08-22-2016, 10:38 PM #6
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Originally Posted by YaledMot View Post
This has been a fascinating series of posts. I have had the fasiculations mostly in my legs for 14 years. It started about the time I started developing the strange symptoms in my feet finally diagnosed as axonal loss polyneuropathy just last week after an EMG. My neurologist essentially blew off my years of fasiculations as "inherited, certainly not ALS." I knew they were not ALS, having had them for 14 years. Come on. I find the fasiculations "go nuts" after certain sorts of exercise and other times, like right now, just sit there and flutter at a low level. I am rarely without them, but I have never had them with "electric shocks" as mentioned in the initial post. I will leave that to my largely dead feet and ankles with the random electric shocks and zaps.
Yeah, I've more-or-less accepted that nobody else in the world has my symptoms, but I'm continuing to eliminate possibilities every week and keeping detailed logs of my experience with the hopes of helping someone else one day.

The jolts only happen about once a month now. The latest things bothering me have been a) "baby kicks" in my lower abdominal area, typically lower right quadrant and b) upper back pain that gets worse w/ driving and better w/ massage and c) feeling weak (not clinical weakness) / fatigue.

I was told by a reputable doctor that these "baby kicks" must be abdominal wall muscle and not intestinal spasms, because I can easily see them. They make it hard to go to sleep sometimes.

Speaking of which, I've finally taken a mag supplement and not gotten diarrhea, so there's hope in that approach and I will continue to experiment w/ various types (e.g. Magnesium Malate, Chelated, etc) to see how my body reacts.

Now wouldn't that be a nice and easy solution?
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Old 08-24-2016, 07:14 AM #7
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Quote:
Originally Posted by slay2k View Post
Yeah, I've more-or-less accepted that nobody else in the world has my symptoms, but I'm continuing to eliminate possibilities every week and keeping detailed logs of my experience with the hopes of helping someone else one day.

The jolts only happen about once a month now. The latest things bothering me have been a) "baby kicks" in my lower abdominal area, typically lower right quadrant and b) upper back pain that gets worse w/ driving and better w/ massage and c) feeling weak (not clinical weakness) / fatigue.

I was told by a reputable doctor that these "baby kicks" must be abdominal wall muscle and not intestinal spasms, because I can easily see them. They make it hard to go to sleep sometimes.

Speaking of which, I've finally taken a mag supplement and not gotten diarrhea, so there's hope in that approach and I will continue to experiment w/ various types (e.g. Magnesium Malate, Chelated, etc) to see how my body reacts.

Now wouldn't that be a nice and easy solution?
Hi Slay,
I just wanted you to know you are not alone with these symptoms. I also have normal magnesium levels and I've tried every form of high quality supplement and get no improvement. I have twitches, jolts, electric shocks. I won't go on with my list of everything else, because it's too long and my diagnosis is at a dead end right now. They know for sure that I have polyneuropathy due to finding nerve damage by biopsy and doing tilt table test. I also have the fascilations in my abdomen that are so strong that it does look like a baby is kicking.
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Old 07-28-2016, 07:58 PM #8
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Out of curiosity what's your serum magnesium level showing? I've been at a steady 2.20 on a normal range of 1.5 - 2.5.
My serum magnesium came back 2.1 with reference range of 1.6-2.3.

I take two Mag 64 supplements daily.

Calcium 224 mg 22% RDA
Magnesium 128 mg 32% RDA
Chloride 374mg 11% RDA
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