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Old 07-28-2016, 07:23 AM #1
Healthgirl Healthgirl is offline
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I have most of your symptoms, but never woke up in a sweat, and my migraines are usually in the morning. You got a lot of good advice here. You probably already started with a neurologist. Next will be a rheumatologist. Many of us here have the buzzing. Its scary at first, but don't let it get you upset. It is important to stay calm. The nervous system is like circuits and electricity. Being upset and scared seems to rev things up and make everyone's problems worse and many of us have to learn the hard way, but it's good advice. I was diagnosed with small fiber polyneuropathy. The skin biopsy is a test done by a neuromuscular neurologist. It took a year for me to get to the right doctor and it is an easy procedure. Also, if you are having autonomic symptoms, you might need the tilt table test.
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Old 07-28-2016, 09:30 AM #2
Ragtop262 Ragtop262 is offline
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Angel, you have gotten some good advice already. But I am curious about one thing: You indicated that you had an MRI, but what areas did they look at? The symptoms you are describing could be caused by either central or peripheral nervous system issues (brain, spinal cord, or peripheral nerves). I am wondering what specific things they were looking to rule in or rule out.

You definitely do need to keep going back to the doctors to get any additional testing that you need to find the cause. As Mrs. D indicated, you could have a very serious condition that needs immediate treatment.

I wish you the best of luck. Please keep us updated on how you are doing.
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Old 08-13-2016, 09:55 PM #3
aachavez1987 aachavez1987 is offline
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aachavez1987 aachavez1987 is offline
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Quote:
Originally Posted by Ragtop262 View Post
Angel, you have gotten some good advice already. But I am curious about one thing: You indicated that you had an MRI, but what areas did they look at? The symptoms you are describing could be caused by either central or peripheral nervous system issues (brain, spinal cord, or peripheral nerves). I am wondering what specific things they were looking to rule in or rule out.

You definitely do need to keep going back to the doctors to get any additional testing that you need to find the cause. As Mrs. D indicated, you could have a very serious condition that needs immediate treatment.

I wish you the best of luck. Please keep us updated on how you are doing.
Hi. I had a ct scan simply due to the fact that I was having a ton of headaches. On the ct scan, they found that I had an enlarged occipital nerve. They then took an MRI of my head. I'm not really sure what they were looking to rule out, but they told me that the enlarged nerve was really not a concern. At the time, my headaches were mostly bilateral at the temple level. Now, my headaches are mostly in the back of my head and I have a lot of pain behind my right eye and on the back side of my head, as well as on the right side of the back of my neck. I know a physical therapist and I casually asked them to look at my head and sort of ''feel around." They were able to pinpoint the exact points of my pain because they said that there were areas on my neck and scalp that felt swollen.
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Old 08-13-2016, 09:50 PM #4
aachavez1987 aachavez1987 is offline
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Originally Posted by Healthgirl View Post
I have most of your symptoms, but never woke up in a sweat, and my migraines are usually in the morning. You got a lot of good advice here. You probably already started with a neurologist. Next will be a rheumatologist. Many of us here have the buzzing. Its scary at first, but don't let it get you upset. It is important to stay calm. The nervous system is like circuits and electricity. Being upset and scared seems to rev things up and make everyone's problems worse and many of us have to learn the hard way, but it's good advice. I was diagnosed with small fiber polyneuropathy. The skin biopsy is a test done by a neuromuscular neurologist. It took a year for me to get to the right doctor and it is an easy procedure. Also, if you are having autonomic symptoms, you might need the tilt table test.
Yes, I had my first visit with a neurologist in late June. He placed me on beta-blockers. In the past few weeks, the pain I'm feeling has been 90% in the back of my head and back of my neck, primarily on the right side. This pain was there when I first saw my neurologist. However, it was minor at the time so I feel like he paid it no mind. I see him again on August 30. I will emphasize how much pain I'm feeling in the back of my neck and behind my ears. I did some research and saw that there was something called a cervical herniated disc and occipital neuralgia. I am wondering if this could be what I have. This also reminded me that the nerve that was enlarged (when I had a ct scan) was the occipital nerve. They explained that this is why they took the MRI. But if I had a MRI and ct scan, I imagine something like a herniated disk would have been seen. I'm not really sure.

-Angel
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