NeuroTalk Support Groups - I have neuropathy or psychalgia? :/

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - I have neuropathy or psychalgia? :/ (https://www.neurotalk.org/peripheral-neuropathy/238313-neuropathy-psychalgia.html)

Thank you for the kind wishes. I appreciate it.

Regarding the skin biopsy not being available where you are, well it wasn't available where I am either, so they had to send it to the USA for me also. They took the sample here and then sent it off to the USA. Just letting you know in case that's something that interests you.

Regarding SFN and Fibromyalgia, this is the research I had in mind: Objective evidence that small-fiber polyneuropathy underlies some illnesses currently labeled as fibromyalgia. - PubMed - NCBI. Perhaps it will be useful.

Best of luck to you!

Quote:

Originally Posted by Marianolp (Post 1222415)

Thank you man for the reply, and sorry for not to be that clear, I know what you said about fibro, I read alot of it and I dont have noone of their thender points or sleep problems and etc, but I tough he use the word as a concept, not as the rigid encyclopedic way, also fibromialgya in the present may be very different of what you read "specific tender points" " middle age women" "sleep problems" and etc, is something that is somewhat unknow and concept change year by year I believe, but he told me that he saw lot of people is similar cases as me (so that could be good for me) he also didn't charge consultation (by luck). The good thing is that i will have a medication to take soon, (he mentioned maybe "venlafaxine") But first he have to discuss better the diagnosis with my primary doctor (both of they help many people, and are well know on other countries, so at least Im in good hands, they look very serious and not stupid novice doctors lol, so im very quiet with it). I'm living a hell of this sometimes and try to distract my mind of this horrid pain by eating a lot or taking showers, or distracting and abusing the pc :( there are times I have to push a sensitive part of my feet (like a bruise feeling) to try to aliviate it or scratch my burning sensitive skin, while other days Im better.
:( its a sad state... And I live in Argentina and seems that here skin biopsy dont exist for evaluate nerves :confused:
I didnt understand very well what he said but i read before that a psychogenic state cant cause neuropathy just aggravate it, only can cause similar syntoms (but ther isnt a neuropathy?)

To close that he said that on "informatic terms" :

that he dont know if is the motherboard or the O.S but i have desconfiguration. and he mentioned that having pain in random parts of the body can correspond to a phenomen called "central sensitizazion". I suffered in the past more syntoms that never were too clear like sensitive to cold and tongue biting habit to lead in a horrod pain too :( so i have an history of anxiety and depression, also seems that didnt have a neuropathy symptom other than pain, altough the palm of my hand became red and bright when warm themp up.. Im 26 and lived half of my life with weird and bad symptom and did millons of medic visits for little bit, but a few things were resolved, after much insist, hopefully the nightmare ends soon..

Now Im feeling a "splinter feeling" in a part of my finger that was brushed just a bit with a screwdriver o.O T_T .....

Thank you and much luck to you too man...

Quote:

Originally Posted by DavidHC (Post 1222457)

Ok thanks I def will read that, as Im study the whole case on my own too to have better options. May I ask you where you from? And if you can, paste a link of your first post or your most representative post about your case here? thanks.

Well, here's one main post: http://www.neurotalk.org/peripheral-...sfn-story.html. And I'm from Canada.

Quote:

Originally Posted by Marianolp (Post 1222473)

Quote:

Originally Posted by Marianolp (Post 1218736)

Oh, i forgot some a couple things. I read lot mention "TENS" stimulation or newer ones. They really help? Somebody tried it? And other tecniques like Minfullness and Biofeedback?

And the other doubt I have is ...somebody knows if neuropathy can lead in sensitive to cold feet , legs, hands (e.g. feets very sensitive to the cold, freeze feets cold to touch) ???

I have severe PN, 3years, it's is affecting my walking and my sleep. I'm 84+ and getting more frustrated by the day. I have always been very active and of course l miss my outside work! Of all the remedies that I'm prescribed none have given me relleif. Also I have a wife who needs a certain amount of care. What a life but keep your chins up and have a little Whistle. I've got a tens, doesn't help much. Also all the other medications that are prescribed. As yon know, all medicines are free to the elderly in this country. We are very lucky in that respect. I'm always saying"My feet are killing me"

I would like to comment that I started with venlafaxine one month ago by suggestion of the neurologist that diagnosed me. That doctor told me that time that he treated lot of people with pain and my diagnosis what somewhat confusing to me, he mentioned neuropathy, fibro, emotional things and suggested venlafaxine, psychoteraphy and sports, well I just started venlafaxine and symptoms clearly improved altough sometimes have some discomfort but it is much safer than the previous state, i have less pain or less frecuent, so maybe he knows what he do.

Quote:

Originally Posted by Marianolp (Post 1227201)

I'm glad to hear that you are feeling better. Everyone responds differently to the medications, and sometimes it is very hard to find the right combination of things that works. Hopefully the things you are doing will continue to help for the long term. :)

Quote:

Originally Posted by Ragtop262 (Post 1227455)

Thank you very much for your words, seems there is lot of friendly and humble people here. I'm glad too because it was very annoying and demoralizing and also I was suffering for multiple health problems which some of these also includes were "rare" and include awful pain too, despite my countless efforts visiting hundreds of doctors, and spending a tremendous amount of time, money, and health over a decade! and passing lots horrible moments (eg bad exp with psychiatrists) ...a rare case i am, i believe.
After much effort some lights began to appear on the road, not only whit this problem but whit the rest too few years ago, Now it's time to rearrange my life a little lighter and get with more pacience a little more information about the diagnosis.

I'm still suffering problems of pain sensitivity, burning but this time in a much more decent way (less frequent and / or severe) and side effects of the venlafaxine like insomnia (that probably improve with time) and anesthetic feelings in the first phases of ejaculation ( I will consult with my doctor about this at the next visit)

Cheers and txs!

As I wrote before, I'm better (maybe 60%) but still not to said "I'm good", I live with some discomforts. Doctor tough my problem is the plus of neuropathy and psychosomatic. He suggested psychology and sports. I'm not of any of these, Im not going to psychologyst nor doing sports since months. I ask him about diet and he told me "eat what you want". So Its really true that sports and/or psychologist can improve this? I will start with this soon...

Quote:

Originally Posted by Marianolp (Post 1230889)

I think I may have Central sensitization too since I get waves of goosebumps all over, feel very sensitive to cold (severe) and my neuropathy came and went, it responded very quick to medication (e.g. elavil)