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-   -   Medications for SFN (https://www.neurotalk.org/peripheral-neuropathy/238664-medications-sfn.html)

JoannaP79 08-19-2016 02:28 PM

Quote:

Originally Posted by DavidHC (Post 1221049)
Thanks for this suggestion. I'll look into, likely get a RX and have it on hand. Does it have any side effects? Does it cause constipation? Isn't that a thing with such meds? Other than the addition issue that one needs to be aware of of course. Also, does it completely take your pain away? If so, does it leave you numb mentally? I would need to be aware all day, that's the problem. And it sounds like it lasts all day, or 24 hours. Sorry for all the questions, but it's always better to speak to a live person who is taking it rather than read about it online, especially when that person has symptoms similar to your own. :)

For me there aren't really negative side effects. I think it may cause slight constipation but not enough to notice. It can make you lose your appetite a little bit but nothing horrible like some drugs do. It really isn't a zombie effect, for me it's the opposite. It gets me going, I clean, I get on and have a good day with more energy. Its a very effective pain reliever I feel. If the pain is there still, it's pushed right into the background so you can get on a bit more positively alongside it rather than feeling soul destroyed.
There have been times where I've had such a great day that I didn't want to come back to normal 24 hours later. That's about how long I feel the effect but I'm a lightweight. When it's out your system you just adjust again. It's a little euphoric high you get with it rather than anything scary at all and that's the addictive draw. I find it very pleasurable considering most days are immersed in pain discomfort and consequential misery. It is nothing overwhelming like you get with recreational drugs, it's very subtle.
Why don't you just try one one day and see how it goes. I doubt it will make you sick like some of the other drugs. But if you have a problem you can get it out your system quickly enough.
It will not make you out of it to the extent that you are giving the game away. Unless you have a bad reaction like some people out there possibly will then no one will be any the wiser you have taken it.
We are all different but my experience has been good. I struggle tolerating all sorts of drugs but this I can pretty well.
I take the minimum, one 50mg capsule a day as and when.

DavidHC 08-19-2016 10:26 PM

It sounds like we should all be on this all the time! :)

Thank you so much for all this information. I'll get a RX and go from there. I don't have nearly enough pain to justify it now, but in case things go downhill, though I hope them don't. If/when I do try it, I'll let you know.

Glad you have something like this and that you can find some relief now and then. Thanks again!


Quote:

Originally Posted by JoannaP79 (Post 1221072)
For me there aren't really negative side effects. I think it may cause slight constipation but not enough to notice. It can make you lose your appetite a little bit but nothing horrible like some drugs do. It really isn't a zombie effect, for me it's the opposite. It gets me going, I clean, I get on and have a good day with more energy. Its a very effective pain reliever I feel. If the pain is there still, it's pushed right into the background so you can get on a bit more positively alongside it rather than feeling soul destroyed.
There have been times where I've had such a great day that I didn't want to come back to normal 24 hours later. That's about how long I feel the effect but I'm a lightweight. When it's out your system you just adjust again. It's a little euphoric high you get with it rather than anything scary at all and that's the addictive draw. I find it very pleasurable considering most days are immersed in pain discomfort and consequential misery. It is nothing overwhelming like you get with recreational drugs, it's very subtle.
Why don't you just try one one day and see how it goes. I doubt it will make you sick like some of the other drugs. But if you have a problem you can get it out your system quickly enough.
It will not make you out of it to the extent that you are giving the game away. Unless you have a bad reaction like some people out there possibly will then no one will be any the wiser you have taken it.
We are all different but my experience has been good. I struggle tolerating all sorts of drugs but this I can pretty well.
I take the minimum, one 50mg capsule a day as and when.


hbielski1905 08-21-2016 11:29 PM

Hey all, I take Cymbals which truely saved my ability to walk. Gabapentin never did anything for me but make me loose my memory.
Only recently my doctor moved me to carbomazapine, I take 600 mg. 300 in the morning and again at night. I'm finally able to have my wife touch me. That was really hard for us. I still have pain and flare ups but they are better and more manageable now.
I'm still quite fatigued but Nuvagill helped with that. I just wish I didn't sweat like I ran the Boston Marathon when just walking to my car.

Side effects will continue but having a more meaningful life has made me happy!!

Sent from my XT1585 using Tapatalk

DavidHC 08-24-2016 04:05 PM

Thank you for sharing this with me/us. It's useful. I appreciate it.

More than that though I'm happy to hear that you are happy. That's wonderful!


Quote:

Originally Posted by hbielski1905 (Post 1221280)
Hey all, I take Cymbals which truely saved my ability to walk. Gabapentin never did anything for me but make me loose my memory.
Only recently my doctor moved me to carbomazapine, I take 600 mg. 300 in the morning and again at night. I'm finally able to have my wife touch me. That was really hard for us. I still have pain and flare ups but they are better and more manageable now.
I'm still quite fatigued but Nuvagill helped with that. I just wish I didn't sweat like I ran the Boston Marathon when just walking to my car.

Side effects will continue but having a more meaningful life has made me happy!!

Sent from my XT1585 using Tapatalk



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